This study is actively recruiting

Description: Researchers at the Kennedy Krieger Institute and the Johns Hopkins Hospital are looking for volunteers to participate in a research study on neurodevelopment in young children with sickle cell disease.

To participate in the study, your child must:

  • Be under 5 years of age
  • Have a diagnosis of sickle cell disease
  • Be willing to have a neurodevelopmental evaluation.

This study involves 3 study visits involving:

  • History and neurological examination
  • Neuropsychological testing
  • MRI of the brain
  • Blood sample completed at one of the visits above

After the 3 visits above, this study may require annual visits until age 5, including neurological exam and blood sample collection. At their final visit at age 5, this study will require neurological examination, neuropsychological testing, MRI of the brain, and blood sample collection.  Participations will receive compensation .

Eligibility & Criteria

IRB # : :IRB00096434

Principal Investigator: Eboni Lance, MD, PhD

Eligible Age Range: under age 5

Gender: All

Diagnosis:  Sickle Cell

Contact:  Eboni Lance at 443-248-6714 or email

Keywords: Sickle Cell

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