This study is currently recruiting.

Description: FORWARD-MARCH is the next step following a highly successful research study called FORWARD (Fragile X Online Registry With Accessible Research Database) that was started in 2012. The FORWARD study created the largest database of information on fragile X syndrome (FXS) in the United States. Data from the FORWARD study is being used by researchers to learn about the lives of people with FXS, including medication use, behaviors, and development over time, and share findings with other researchers and clinicians.

Eligibility & Criteria

IRB #:00337864

Principal Investigator: Dejan B. Budimirovic, MD

Eligible Age Range: Individuals born between 2003 and 2017

Gender: All

Diagnosis: Fragile X Syndrome

There is no cost to participate in the study. Patients who take part will receive all study-related visits, tests, and investigational drug from a dedicated medical team at no cost. No health insurance is required. 

Contact Information: Call the Clinical Trials Unit at Kennedy Krieger Institute at 443-923-3850.

Click here to view study flyer.