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Fragile X Syndrome Studies

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Kennedy Krieger Institute Research Participate in Research Fragile X Syndrome Studies
this section

Participate in Research

  • ADHD Studies
    Show more
    • A Phase 4, Randomized, Double-Blind, Multicenter, Placebo-Controlled, Parallel-Group Study of the Efficacy and Safety of SPN 812 in Preschool-Age Children (4 to 5 years old) with Attention-Deficit/Hyperactivity Disorder (ADHD)
    • Examination of the dynamic relationship of sleep, physical activity, and circadian rhythmicity with neurobehavioral heterogeneity in ADHD
    • Executive Functions in Reading
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
  • Autism Studies
    Show more
    • Application and Validation of the RITA-T (Rapid Interactive screening Test for Autism in Toddlers) in Children 3-5 years Old
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • Developing New Diagnostic Tools for Autism
    • Exploring Ecological Momentary Assessment Methods to Evaluate Anxiety and Intolerance of Uncertainty in Autistic Adolescents
    • Online Research Opportunity ages 12 – 36 months
    • Seeking children with suspected autism and anxiety to participate in a research study
    • Social Communication Intervention for Toddlers with Autism Spectrum Disorder
  • Batten Disease Studies
    Show more
    • Kennedy Krieger Institute Research Video Repository
    • Neuronal Ceroid Lipofuscinoses Natural History Study
  • Caregiver Studies
    Show more
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • To explore how individual members of the family are affected by caregiver burden when providing care for a child with special needs.
  • Cerebral Palsy Studies
    Show more
    • Noninvasive Research Study to Explore Chronic Pain in Individuals With Cerebral Palsy
    • Research Opportunity for Children and Adults with Cerebral Palsy and/or Caregivers
    • Valbenazine for the Treatment of Dyskinesia Due to Cerebral Palsy (Neurocrine)
  • Clinical Trials
    Show more
    • A Randomized Study of BPN14770 in Male Adolescents (Aged 12 to < 18 Years) With Fragile X Syndrome
    • Assessment of Potential for Chronic Liver Injury in Participants Treated With Epidiolex (Cannabidiol) Oral Solution
    • The Balance Study
    • Epidiolex® For the Treatment Of Anxiety Comorbidity In Refractory Pediatric Epilepsy (EAPE)
    • Explore our Fragile X Syndrome Clinical Research Trial
    • Forward-March Fragile X Study
    • Perinatal Arterial Stroke: A Multi-site RCT of Intensive Infant Rehabilitation (I-ACQUIRE)
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
    • A Phase 1-2, Double-Blind Sham-Controlled Multiple Ascending Dose Study to Evaluate Safety, Tolerability, Pharmacokinetics, and Pharmacodynamics of Intrathecally-Administered ION440 in Patients with MECP2 Duplication Syndrome (ATTUNE)
    • Amgen Osteogenesis Imperfecta Study
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
    • Cerebral Adrenoleukodystrophy (CALYX)
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Genetic Causes of Intellectual Disability
    • Guanfacine for Hyperactivity in Children with Down Syndrome (HYP01; HYPEbeGONE_DS)
    • Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD)
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
  • Cornelia de Lange
    Show more
    • Cornelia de Lange Behavior Study
  • Epilepsy Studies
    Show more
    • Does Your Child Have Epilepsy?
    • JHU/KKI Epilepsy Brain Imaging Research Study
  • Fragile X Syndrome Studies
    Show more
    • Forward-March Fragile X Study
  • Learning Disorders Studies
    Show more
    • Computerized Reading Intervention Research Study
  • Leukodystrophies Studies
    Show more
    • Cerebral Adrenoleukodystrophy (CALYX)
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Genetic Causes of Intellectual Disability
    • Have you been diagnosed with Cerebral X-linked Adrenoleukodystrophy (cALD)
  • Muscular Dystrophy Studies
    Show more
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
  • Osteogenesis Imperfecta Studies
    Show more
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
  • Pregnancy and Infancy Studies
    Show more
    • The HEALthy Brain and Child Development (HBCD) Study
  • Research Studies and Trials by Diagnosis
  • SCIPS Research Study
    Show more
    • Join SCIPS
  • Sickle Cell Disease Studies
    Show more
    • Recruiting children with sickle cell disease under 5 years of age.
    • Sickle Cell Research Study
    • Are you interested in a study on hearing loss and dizziness?
  • Social Communication Studies
    Show more
    • Online Research Opportunity ages 12 – 36 months
  • Spark for Autism
    Show more
    • Who Can Join SPARK?
    • Meet The Team
    • SPARK Webinars and Articles
    • CASSI Presentations
  • Spinal Cord Injury Studies
    Show more
    • Adults with spinal cord injury needed to participate in a 4-week cycling program
  • Stomach Studies
    Show more
    • What is your stomach saying to your brain?
  • Typically Developing Children
    Show more
    • Computerized Reading Intervention Research Study
    • Developing New Diagnostic Tools for Autism Adults
    • Examination of the dynamic relationship of sleep, physical activity, and circadian rhythmicity with neurobehavioral heterogeneity in ADHD
    • Exploring Sleep Patterns and Differences in Children with Autism and Neurotypical Children
    • JHU/KKI Epilepsy Brain Imaging Research Study
    • Online Research Opportunity ages 12 – 36 months
    • Research Opportunity for Healthy Children or Adults
    • Research Volunteers Needed
    • Seeking teens with and without autism to participate in a research study!
    • Typically Developing Participants – Ages 6 - 17

Currently Recruiting Studies

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Forward-March Fragile X Study

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this section

Participate in Research

  • ADHD Studies
    Show more
    • A Phase 4, Randomized, Double-Blind, Multicenter, Placebo-Controlled, Parallel-Group Study of the Efficacy and Safety of SPN 812 in Preschool-Age Children (4 to 5 years old) with Attention-Deficit/Hyperactivity Disorder (ADHD)
    • Examination of the dynamic relationship of sleep, physical activity, and circadian rhythmicity with neurobehavioral heterogeneity in ADHD
    • Executive Functions in Reading
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
  • Autism Studies
    Show more
    • Application and Validation of the RITA-T (Rapid Interactive screening Test for Autism in Toddlers) in Children 3-5 years Old
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • Developing New Diagnostic Tools for Autism
    • Exploring Ecological Momentary Assessment Methods to Evaluate Anxiety and Intolerance of Uncertainty in Autistic Adolescents
    • Online Research Opportunity ages 12 – 36 months
    • Seeking children with suspected autism and anxiety to participate in a research study
    • Social Communication Intervention for Toddlers with Autism Spectrum Disorder
  • Batten Disease Studies
    Show more
    • Kennedy Krieger Institute Research Video Repository
    • Neuronal Ceroid Lipofuscinoses Natural History Study
  • Caregiver Studies
    Show more
    • Are you a parent/caregiver of a child with developmental delay or autism?
    • To explore how individual members of the family are affected by caregiver burden when providing care for a child with special needs.
  • Cerebral Palsy Studies
    Show more
    • Noninvasive Research Study to Explore Chronic Pain in Individuals With Cerebral Palsy
    • Research Opportunity for Children and Adults with Cerebral Palsy and/or Caregivers
    • Valbenazine for the Treatment of Dyskinesia Due to Cerebral Palsy (Neurocrine)
  • Clinical Trials
    Show more
    • A Randomized Study of BPN14770 in Male Adolescents (Aged 12 to < 18 Years) With Fragile X Syndrome
    • Assessment of Potential for Chronic Liver Injury in Participants Treated With Epidiolex (Cannabidiol) Oral Solution
    • The Balance Study
    • Epidiolex® For the Treatment Of Anxiety Comorbidity In Refractory Pediatric Epilepsy (EAPE)
    • Explore our Fragile X Syndrome Clinical Research Trial
    • Forward-March Fragile X Study
    • Perinatal Arterial Stroke: A Multi-site RCT of Intensive Infant Rehabilitation (I-ACQUIRE)
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
    • A Phase 1-2, Double-Blind Sham-Controlled Multiple Ascending Dose Study to Evaluate Safety, Tolerability, Pharmacokinetics, and Pharmacodynamics of Intrathecally-Administered ION440 in Patients with MECP2 Duplication Syndrome (ATTUNE)
    • Amgen Osteogenesis Imperfecta Study
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
    • Cerebral Adrenoleukodystrophy (CALYX)
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Genetic Causes of Intellectual Disability
    • Guanfacine for Hyperactivity in Children with Down Syndrome (HYP01; HYPEbeGONE_DS)
    • Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD)
    • Multimodal brain imaging of the neural effects of methylphenidate in patients with ADHD
  • Cornelia de Lange
    Show more
    • Cornelia de Lange Behavior Study
  • Epilepsy Studies
    Show more
    • Does Your Child Have Epilepsy?
    • JHU/KKI Epilepsy Brain Imaging Research Study
  • Fragile X Syndrome Studies
    Show more
    • Forward-March Fragile X Study
  • Learning Disorders Studies
    Show more
    • Computerized Reading Intervention Research Study
  • Leukodystrophies Studies
    Show more
    • Cerebral Adrenoleukodystrophy (CALYX)
    • Characterization of the Natural History of Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
    • Genetic Causes of Intellectual Disability
    • Have you been diagnosed with Cerebral X-linked Adrenoleukodystrophy (cALD)
  • Muscular Dystrophy Studies
    Show more
    • A Long-term Observational Study Evaluating Exon-Skipping Therapies in Patients with Duchenne Muscular Dystrophy (EVOLVE)
  • Osteogenesis Imperfecta Studies
    Show more
    • Cardiopulmonary Outcomes in Osteogenesis Imperfecta (BBD7708)
  • Pregnancy and Infancy Studies
    Show more
    • The HEALthy Brain and Child Development (HBCD) Study
  • Research Studies and Trials by Diagnosis
  • SCIPS Research Study
    Show more
    • Join SCIPS
  • Sickle Cell Disease Studies
    Show more
    • Recruiting children with sickle cell disease under 5 years of age.
    • Sickle Cell Research Study
    • Are you interested in a study on hearing loss and dizziness?
  • Social Communication Studies
    Show more
    • Online Research Opportunity ages 12 – 36 months
  • Spark for Autism
    Show more
    • Who Can Join SPARK?
    • Meet The Team
    • SPARK Webinars and Articles
    • CASSI Presentations
  • Spinal Cord Injury Studies
    Show more
    • Adults with spinal cord injury needed to participate in a 4-week cycling program
  • Stomach Studies
    Show more
    • What is your stomach saying to your brain?
  • Typically Developing Children
    Show more
    • Computerized Reading Intervention Research Study
    • Developing New Diagnostic Tools for Autism Adults
    • Examination of the dynamic relationship of sleep, physical activity, and circadian rhythmicity with neurobehavioral heterogeneity in ADHD
    • Exploring Sleep Patterns and Differences in Children with Autism and Neurotypical Children
    • JHU/KKI Epilepsy Brain Imaging Research Study
    • Online Research Opportunity ages 12 – 36 months
    • Research Opportunity for Healthy Children or Adults
    • Research Volunteers Needed
    • Seeking teens with and without autism to participate in a research study!
    • Typically Developing Participants – Ages 6 - 17
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