This study is currently recruiting

Description: Does your child with CdLS display problem behavior? Some children with Cornelia de Lange syndrome engage in behaviors that are harmful to themselves (e.g., head banging, head hitting, self-biting), are harmful to others (e.g., hitting, kicking), or are harmful to the environment (e.g., ripping/breaking/tearing things, banging on surfaces, kicking objects). Sometimes these problem behaviors negatively impact children or their families to the point that treatment is needed. Children with CdLS, who are between the ages of 3 to 15 years old, and who exhibit these types of problem behaviors are needed for a research study. Parents will be asked to complete questionnaires about their child’s behavior, and behavioral assessment and treatment of the problem behaviors will be provided at no charge to the family. Families will be asked to attend 2 full-day clinic visits and 1 half-day clinic visit at Kennedy Krieger Institute. Families will also participate in phone follow-up calls for 3 months after treatment. Families will receive $150 for their participation.

Eligibility & Criteria

IRB# 00223332

Principal Investigator:  Patricia F. Kurtz, PhD

Gender: All

Age:  3 – 15 years of age

Diagnosis:  Cornelia d Lange syndrome with behaviors that are harmful to themselves, harmful to the environment or harmful to others.

Contact Information: John Michael Falligant, PhD at 443-923-9512