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Sturge Weber Syndrome Research

The Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute was founded in 2002 through the Kennedy Krieger’s University Center for Excellence in Developmental Disabilities Education, Research and Service (UCEDD) collaboration with Johns Hopkins University. This Center is dedicated to caring for patients with Sturge-Weber syndrome (SWS). Its goals are to provide:

  1. Comprehensive diagnostic evaluation and coordination of clinical services
  2. Patient, family and physician medical educational services to maximize patient function and
  3. Clinical and translational laboratory research aimed to improve the understanding and treatment of this disorder.

View our research updates and completed studies to learn more about our recent findings.

Expert physicians and health care professionals from a variety of disciplines including; neurology, ophthalmology, dermatology, neuroradiology, rehabilitation medicine and physical, occupational, and speech and language therapy, endocrinology, and neuropsychology work together to provide optimal treatment to meet the needs of these patients.

Kennedy Krieger Institute Announces Retirement of President and CEO

Dr. Gary W. GoldsteinThe Institute’s board of directors is conducting a national search and is expected to name a new CEO in the coming months.
Learn more.


Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.