At the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute, patient's visits are tailored to meet their individual needs and clinical services are coordinated accordingly.

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In this way, the most relevant diagnostic testing can be performed to evaluate and most effectively treat each patient.

Every effort is made to assist patients, their families and referring physicians in the care of patients with SWS by providing education regarding the disease and its various aspects.

In addition to dermatologic, neurologic, and opthalmologic diagnostic evaluations, the Hunter Nelson Sturge-Weber Center provides other evaluation services including EEG, neuroradiologic, rehabilitative medicine and neuropsychologic evaluations. Additional services include:

Multidisciplinary Clinic:

Happening on the first Friday of every month, Sturge-Weber patients can receive high level coordinated care by meeting with four or more providers in the same room. These providers include Dr. Comi (neurology and director of the Hunter-Nelson Sturge-Weber Center), Dr. Zabel (neuropsychology), Dr. Suskauer (medical rehabilitation), Teressa Reidy (Occupational Therapy) and Tracy Schneider (Physical Therapy). Ophthalmology and dermatology appointments can be coordinated as well.

Multidisciplinary Clinic Information (PDF)

Chart Reviews:

The Hunter Nelson Sturge-Weber center can provide expertise and personalized care to patients who cannot travel to Baltimore through a chart review. The process entails sending medical records and pertinent questions to our office, where Dr. Comi will conduct a thorough review and provide guidance and care. If you are interested, please contact Sebold@kennedykrieger.org.

Telemedicine:

Dr. Comi is able to provide care to international patients through telemedicine offerings. For more information, please contact Sebold@kennedykrieger.org.

Planning Your Visit:

If you are interested in visiting the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute, you may have questions about the services that we offer and the experience of the visit itself. We hope that the following information will help you make decisions about your center visit.

Contact us to schedule an appointment to see any of our staff members or with any additional questions you may have about visiting the Hunter Nelson Sturge-Weber Center.

The Hunter Nelson Sturge-Weber Center Factsheet (PDF)