Personal Fundraising Pages are a great way to support the Center. Anyone can set up a fundraising page, whether you're celebrating a birthday or an anniversary, running in a race, or you just want to show your support.

It only takes a few minutes to sign up and the funds you raise will support research and care for children with Sturge-Weber syndrome. You will be able to personalize your page and use it to tell your friends, family, coworkers and community members about your fundraising efforts.

Your page will help to increase your fundraising impact, while making it easy and fun for those close to you to participate in and cheer you on towards your fundraising goals. 

If you would like to set up a Fundraising Page in honor of a birthday or an anniversary, or in anticipation of an event like a marathon, please let Dr. Comi know at

Alex Zaman has experienced hundreds of seizures, received dozens of laser treatments for his skin port-wine stains, and cycled through six anticonvulsants. He has improved under the care of his current medical team. His family is urgently trying to help the Sturge-Weber Center raise funds to support clinical trials for SWS. 
Visit his page.
Matthew Wanger has overcome many hurdles in his journey with SWS. His family is seeking to raise funds for research to better treat SWS and to prevent the medical and development problems resulting from it. 
Visit his page.