The long-term vision for our research is the development of new, more effective treatments for Sturge-Weber syndrome.

To that end, we welcome collaborations with other centers and foundations. Only by bringing together the resources, expertise, patients and people from around the country and the world, can we maximize the efforts and discoveries already made to better treat and prevent SWS. 

2023 Research Highlights

2022 Research Highlights

2021 Research Highlights

2020 Research Highlights

2019 Research Highlights

NIH-Funded Clinical Studies of Sturge-Weber Syndrome Continue

Please note that this information is provided for informational purposes only to those interested in supporting our work and is not for study recruitment.

Read about our current studies to:

Read about our completed studies to:

If you would like to participate in a study or for more information, call Dr. Anne Comi at (443) 923-9569 or email: