Addisyn's Story:

Meet Addisyn, a 9-year-old with Sturge-Weber syndrome currently being treated
at Kennedy Krieger.


Message for Families on Sturge-Weber Breakthrough:

Dr. Anne Comi shares a message for families about news that the gene mutation causing
Sturge-Weber syndrome and port-wine birthmarks was discovered by a team at Kennedy Krieger. 

Help Children with Sturge-Weber Syndrome

Helpk Kids with Sturge-Weber Syndrome

Give to Sturge-Weber Syndrome research and help children enjoy fuller lives through improved diagnosis, care, and education.

Learn More Button

Sturge Weber Fundraising Thermometer

For more information, contact
(443) 923-9569 or (443) 923-9127

Latest Videos

Dr. Comi's Updates

Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome. 


Tribute to Hunter Nelson

Hunter Nelson
In Memory of
Hunter Andrews Nelson
November 5, 1999 -
May 29, 2005

The dream for a cure lives on...


Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.