Visit Checklist

All visitors to the center consult with Dr. Anne Comi, director of the Hunter Nelson Sturge-Weber Center. During this visit, Dr. Comi provides guidance for patients and families concerning ongoing assessment and treatment of children with Sturge-Weber syndrome (SWS). Symptoms of seizures and other neurological episodes, multidisciplinary considerations for people with SWS, as well as resources available to families may be among the topics discussed.

In addition to Dr. Comi, the center's staff includes several other excellent SWS specialists. Please use the checklist below to help determine which of these physician's services may be most appropriate to address your child's needs. If you are interested in one or more items under any doctor’s name, you can email Alyssa Day for information about scheduling a visit with that clinician.

Bernard Cohen, MD and Kate Puttgen, MD
Dermatology 

  • Infant with birthmark not yet confirmed as Port-wine birthmark by dermatologist
  • Interest in laser treatment of Port-wine birthmark
  • Port-wine birthmark that is thickening, developing nodules

Eric Kossoff, MD
Neurology (Epilepsy)

  • Difficult-to-control seizures
  • Side effects from seizure medications
  • Interest in other methods of seizure control, including diet, vagus nerve stimulation (VNS) or neurosurgery

Henry Jampel, MD
Ophthalmology

  • Infant with facial Port-wine birthmark and uncertain about eye involvement.
  • Monitoring for glaucoma
  • Treatment of glaucoma or other Sturge-Weber eye involvement
  • Surgery for glaucoma

Stacy Suskauer, MD
Medical Rehabilitation

  • Difficulty with gross motor skills such as walking, running, or playing sports
  • Difficulty with fine motor skills such as writing, tying shoes, or self-feeding
  • Difficulty eating or speaking
  • Interest in therapy referrals (occupational, physical, and/or speech and language)

Andrew Zabel, MD
Neuropsychology

  • Neuropsychological evaluation to help clarify patterns of learning and behavior
  • Identifying cognitive strengths and intact abilities that can be used for treatment planning
  • Identifying cognitive weaknesses associated with visual problems, seizures, medication-side effects and brain abnormalities
  • Monitoring the child's cognitive stability over time
  • Assistance planning for child's transition from adolescence into adulthood

Help Children with Sturge-Weber Syndrome

Helpk Kids with Sturge-Weber Syndrome

Give to Sturge-Weber Syndrome research and help children enjoy fuller lives through improved diagnosis, care, and education.

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Sturge Weber Fundraising Thermometer

Hunter Nelson

Institute Discovers the Cause of Sturge-Weber

To learn more about our recent discovery View our press coverage

Dr. Comi's Updates

Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome. 

SUBMIT A QUESTION FOR DR. COMI

Sturge-Weber Center Events

Fall 2017:

Tropical Realty Charity Golf Tournament

More information to come!
 

 

Publications

Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.