All visitors to the center consult with Dr. Anne Comi, director of the Hunter Nelson Sturge-Weber Center. During this visit, Dr. Comi provides guidance for patients and families concerning ongoing assessment and treatment of children with Sturge-Weber syndrome (SWS). Symptoms of seizures and other neurological episodes, multidisciplinary considerations for people with SWS, as well as resources available to families may be among the topics discussed.
In addition to Dr. Comi, the center's staff includes several other excellent SWS specialists. Please use the checklist below to help determine which of these physician's services may be most appropriate to address your child's needs. If you are interested in one or more items under any doctor’s name, you can email Alyssa Day for information about scheduling a visit with that clinician.
- Infant with birthmark not yet confirmed as Port-wine birthmark by dermatologist
- Interest in laser treatment of Port-wine birthmark
- Port-wine birthmark that is thickening, developing nodules
Emily Germain-Lee, MD
- Family history of endocrine disorders including thyroid problems and/or diabetes
- Shorter than expected height and/or changes in growth curves for height or weight
- Early, late, or abnormal pubertal development
Eric Kossoff, MD
- Difficult-to-control seizures
- Side effects from seizure medications
- Interest in other methods of seizure control, including diet, vagus nerve stimulation (VNS) or neurosurgery
Henry Jampel, MD
- Infant with facial Port-wine birthmark and uncertain about eye involvement.
- Monitoring for glaucoma
- Treatment of glaucoma or other Sturge-Weber eye involvement
- Surgery for glaucoma
Stacy Suskauer, MD
- Difficulty with gross motor skills such as walking, running, or playing sports
- Difficulty with fine motor skills such as writing, tying shoes, or self-feeding
- Difficulty eating or speaking
- Interest in therapy referrals (occupational, physical, and/or speech and language)
Andrew Zabel, MD
- Neuropsychological evaluation to help clarify patterns of learning and behavior
- Identifying cognitive strengths and intact abilities that can be used for treatment planning
- Identifying cognitive weaknesses associated with visual problems, seizures, medication-side effects and brain abnormalities
- Monitoring the child's cognitive stability over time
- Assistance planning for child's transition from adolescence into adulthood
Institute Discovers the Cause of Sturge-Weber
To learn more about our recent discovery View our press coverage
Dr. Comi's Updates
Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome.
Sturge-Weber Center News
Sturge-Weber Center Events
Tropical Realty Charity Golf Tournament
NOVEMBER 15, 2016
Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.