Research Initiatives


The long-term vision for our research is the development of new, more effective treatments for Sturge-Weber syndrome. To that end, we welcome collaborations with other centers and foundations. Only by bringing together the resources, expertise, patients and people from around the country and the world, can we maximize the efforts and discoveries already made to better treat and prevent SWS. 

NIH-Funded Clinical Studies of Sturge-Weber Syndrome Continue

Please note that this information is provided for informational purposes only to those interested in supporting our work and is not for study recruitment.

If you would like to participate in a study or for more information, call Dr. Anne Comi at (443) 923-9569 or email:

Read about our current studies to:

Read about our completed studies to:

Help Children with Sturge-Weber Syndrome

Helpk Kids with Sturge-Weber Syndrome

Give to Sturge-Weber Syndrome research and help children enjoy fuller lives through improved diagnosis, care, and education.

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Sturge Weber Fundraising Thermometer

For more information, contact
(443) 923-9569 or (443) 923-9127

Latest Videos

Dr. Comi's Updates

Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome. 


Tribute to Hunter Nelson

Hunter Nelson
In Memory of
Hunter Andrews Nelson
November 5, 1999 -
May 29, 2005

The dream for a cure lives on...


Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.