The long-term vision for our research is the development of new, more effective treatments for Sturge-Weber syndrome. To that end, we welcome collaborations with other centers and foundations. Only by bringing together the resources, expertise, patients and people from around the country and the world, can we maximize the efforts and discoveries already made to better treat and prevent SWS.
Please note that this information is provided for informational purposes only to those interested in supporting our work and is not for study recruitment.
If you would like to participate in a study or for more information, call Dr. Anne Comi at (443) 923-9569 or email: firstname.lastname@example.org.
Read about our current studies to:
- Improve Clinical Care of Sturge-Weber syndrome
- Improve Diagnosis and Monitoring of Sturge-Weber syndrome
- Better Understand the Pathogenesis (Cause) of Sturge-Weber Syndrome
- Study the safety of sirolimus for the treatment of cognitive impairments in Sturge-Weber syndrome brain involvement
Read about our completed studies to:
Institute Discovers the Cause of Sturge-Weber
To learn more about our recent discovery View our press coverage
Dr. Comi's Updates
Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome.
Sturge-Weber Center News
Sturge-Weber Center Events
Tropical Realty Charity Golf Tournament
NOVEMBER 15, 2016
Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.