Create a Fundraising Page

Personal Fundraising Pages are a great way to support the Center. Anyone can set up a fundraising page, whether you're celebrating a birthday or an anniversary, running in a race, or you just want to show your support.

It only takes a few minutes to sign up and the funds you raise will support research and care for children with Sturge-Weber syndrome. You will be able to personalize your page and use it to tell your friends, family, coworkers and community members about your fundraising efforts.

Your page will help to increase your fundraising impact, while making it easy and fun for those close to you to participate in and cheer you on towards your fundraising goals. 

If you would like to set up a Fundraising Page in honor of a birthday or an anniversary, or in anticipation of an event like a marathon, please let Dr. Comi know at comi@kennedykrieger.org.

Current Fundraising Pages

Please check out these fundraising pages and find out the inspiring stories behind why these extraordinary people give:

Lizzie Click  

Lizzie Click was born with bilateral Sturge-Weber Syndrome, affecting her brain, vision and skin. Lizzie is eager to see the recent discovery of the genetic cause of Sturge-Weber Syndrome translated into improved treatments, a better quality of life, and ultimately a cure. Visit her page

     
Alex Zaman   At seven years old, Alex Zaman has experienced hundreds of seizures, received 25 laser treatments for his skin port-wine stains, and cycled through six anticonvulsants. He has improved recently under the care of his current medical team. His family is urgently trying to help the Sturge-Weber Center raise funds to support clinical trials for SWS. 
Visit his page.
     
Matthew Wanger   Matthew Wanger has overcome many hurdles in his journey with SWS. His family is seeking to raise funds for research to better treat SWS and to prevent the medical and development problems resulting from it. 
Visit his page.

 

Help Children with Sturge-Weber Syndrome

Helpk Kids with Sturge-Weber Syndrome

Give to Sturge-Weber Syndrome research and help children enjoy fuller lives through improved diagnosis, care, and education.

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Sturge Weber Fundraising Thermometer

Hunter Nelson

Institute Discovers the Cause of Sturge-Weber

To learn more about our recent discovery View our press coverage

Dr. Comi's Updates

Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome. 

SUBMIT A QUESTION FOR DR. COMI

Sturge-Weber Center Events

OCTOBER 1, 2016
Tropical Realty Charity Golf Tournament
 

NOVEMBER 15, 2016
Holiday Boutique

 

Publications

Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.