How You Can Help

Help Us Develop New and Better Treatments

With the recent discovery of the cause of Sturge-Weber syndrome, we have opened the door to investigating new drugs and treatments. We urgently need your support to develop and test these treatments that will radically change the lives of those living with Sturge-Weber syndrome.

Why Support Sturge-Weber Syndrome Research?

Every gift we receive will help us advance the science of Sturge-Weber syndrome and its management, develop new treatments and serve more children with exemplary care. The impact of your generosity will be felt directly by children and their families and by the medical community that seeks to help them. 

A rare disease like Sturge-Weber syndrome has fewer sources of support.  But research on a rare disease like Sturge-Weber syndrome is important to the patients and families who wait for better treatment and because of the insights that can be gained from a cause of stroke and seizures where the underlying gene and molecular pathway is known. 

Your gift could support:

  • Laboratory research in genetics, tissue studies, and novel drug development
  • Clinical research in new effective treatments, diagnosis, and care of patients
  • Clinical improvements in many areas, including stroke, epilepsy, dermatology and ophthalmology
  • Advocacy and education through national and international collaborations with medical institutions, foundations, and individuals.

For more information or to become more involved, please contact Dr. Anne Comi at 443-923-9569 or at comi@kennedykrieger.org.

Create a Fundraising Page to Support the Center

Personal Fundraising Pages are another great way to help support the Center. Learn more about fundraising pages.

Your gift allows us to transform the lives of patients with Sturge-Weber syndrome through world-class research, clinical care, and the development of the treatments of the future.

Will you help us fulfill our mission? Please click here to send us a donation, or contact us at comi@kennedykrieger.org with any questions.

Help Children with Sturge-Weber Syndrome

Helpk Kids with Sturge-Weber Syndrome

Give to Sturge-Weber Syndrome research and help children enjoy fuller lives through improved diagnosis, care, and education.

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Hunter Nelson

Institute Discovers the Cause of Sturge-Weber

To learn more about our recent discovery View our press coverage

Dr. Comi's Updates

Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome. 

SUBMIT A QUESTION FOR DR. COMI

Sturge-Weber Center Events

Fall 2017:

Tropical Realty Charity Golf Tournament

More information to come!
 

 

Publications

Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.