2020 LBSL Virtual Conference:
The LBSL Conference was held virtually November 14-16.
It was a success, with more than 70 people in attendance, representing 14 countries and 4 continents.
View the video sessions from the conference below.
News & Updates:
For more than 30 years, Kennedy Krieger Institute has been globally recognized as an authority on the study and care for patients diagnosed with a wide range of leukodystrophies. This international reputation is thanks to the lasting legacy of the late Dr. Hugo W. Moser, one of the world’s foremost leaders in the field of leukodystrophies.
Dr. Moser’s visionary thinking and belief that innovative research should enhance clinical care had a profound impact on his patients, peers, and generations of former trainees, who remain highly dedicated to improving the lives of individuals with leukodystrophies worldwide.
Today, that commitment continues--through the Moser Center for Leukodystrophies at Kennedy Krieger where leading edge techniques in neuroimaging, genomics, biomedical engineering, and nanotechnology help our experts to enhance understanding, diagnosis, and treatment.
The center provides comprehensive care to patients with leukodystrophies through an interdisciplinary approach, bringing together the fields of neurogenetics, genetic counseling, neurorehabilitation, endocrinology, and urology, along with physical, occupational, speech, and aquatic therapy. Following in Dr Moser’s footsteps, the center works collaboratively with other leukodystrophy centers across the country and around the world to ensure that each and every patient receives the best possible care.
Our mission is to improve the care of individuals affected by a leukodystrophy from early childhood to late adulthood.
Our vision is to combine cutting edge techniques in neuroimaging, genomics, biomedical engineering, and nanotechnology to develop new diagnostic tools and novel therapeutics for leukodystrophies. Furthermore, we aspire to provide the best possible comprehensive care to patients with leukodystrophies through an interdisciplinary approach.
Primary Diagnoses Served:
- Alexander Disease
- Canavan Disease
- Cerebrotendinous Xanthomatosis
- Krabbe Disease (globoid cell leukodystrophy)
- Leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation (LBSL)
- Metachromatic Leukodystrophy
- Pelizaeus-Merzbacher Disease
- Vanishing White Matter Leukodystrophy
- Hypomyelinating Disorders
- Undiagnosed Leukodystrophies
The Moser Center for Leukodystrophies is a Leukodystrophy Care Network (LCN) Center, meeting or exceeding the criteria for LCN Certification. The Leukodystrophy Care Network (LCN) is a community of affected families, organizations and medical providers committed to revolutionizing the health and quality of life of individuals affected by Leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers. To learn more, please visit the LCN website.
Connect with Us:
We welcome your questions and referrals. To schedule an appointment or for more information about a referral or evaluation, please contact us at: Leukodystrophy@KennedyKrieger.org or call 443-923-2750.
TTY users, please contact us at 443-923-2645 or dial 711 to make a Maryland Relay call.