Please join Kennedy Krieger Institute and Cure LBSL as they co-host a weekend of hope, sharing and education at the 5th biennial LBSL Patient and Scientific Conference.
About the Conference
The fifth biennial LBSL Patient & Family Conference is coming—and it’ll be the best one yet. Cure LBSL and Kennedy Krieger Institute are proud to co-host three extraordinary days of hope, science and community this summer.
Offering the latest research updates and clinical insights, with a focus on clinical trial readiness and gene therapy, this conference reflects how far the LBSL community has come—and how close we’re getting to a therapy.
Join us virtually as we dig into what's happening in the lab, what's on the horizon, and what it means for families living with this ultra-rare disease today. Whether you're a patient, caregiver, family member, researcher, clinician or advocate, this is an LBSL event you don't want to miss!
This year's conference will be hosted virtually on Zoom. This event will be recorded and shared.
- There is no charge for participation.
Language translation and interpretation services will be available.
Please use the registration form to register for the event and to let us know about your comfort and accessibility needs.