Through a partnership with Johns Hopkins Medicine, Kennedy Krieger Institute has launched a new Pediatric Neurofibromatosis Program, expanding access to specialized care for children with neurofibromatosis (NF). The program is led by Dr. Stephanie Morris, a pediatric neurologist who specializes in caring for children with complex developmental, behavioral, and neurologic disorders.
NF refers to a group of genetic conditions that cause tumors to develop throughout the nervous system. The disorder can also affect cognitive, skeletal, and vascular development. Through its collaboration with the Johns Hopkins Comprehensive Neurofibromatosis Center (JHCNC), the program offers comprehensive pediatric care, including neurodevelopmental evaluation and management, genetic testing, physical therapy, occupational therapy, and other interdisciplinary services. The JHCNC will continue to provide specialized clinical care while advancing research to improve outcomes for individuals with NF.