Healthcare communication can be difficult sometimes, particularly if your child sees many different providers.
These videos, generated by a project engaging patients and providers that was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EASC #00258), offer tips to help make healthcare communication more effective during and in between your child’s appointments.
Here is a summary of the information provided in these videos: Communicating Well with Your Child's Healthcare Providers: A Guide to Action Steps
Here is a link to the downloadable and printable Health Information Summary Sheet that is discussed in the first video, which can help you prepare for your child’s appointment by organizing your questions and concerns.
Resources for Caregivers
- Disabilities | Center for Parent Information and Resources (parentcenterhub.org)
- Intellectual and Developmental Disabilities (IDDs) | NICHD - Eunice Kennedy Shriver National Institute of Child Health and Human Development (nih.gov)
- Medical Home Portal - Care Notebook
- A Family Toolkit: Pediatric-to-Adult Health Care Transition (gottransition.org)
- Understood - For learning and thinking differences
- Family Voices
- AUCD - Links to Related Resources
- Resources for Caregivers | ARCH National Respite Network & Resource Center (archrespite.org)
- The Arc | For People With Intellectual & Developmental Disabilities