The Phelps Center for Cerebral Palsy has compiled a list of helpful links. The center is providing these links to related resources as a service to our families and fellow healthcare professionals.
General Resources
- Resource Finder at Kennedy Krieger Institute: The goal of the Resource Finder is to inform consumers, families, and professionals about community services, trainings, research, and other information on developmental disabilities and related disorders across the lifespan.
- NIH National Institute of Neurological Disorders and Stroke- Cerebral Palsy
- CP Channel App: Cerebral Palsy Foundation has developed a mobile app for people with CP, families, friends, and also therapists and general practitioners who want to know more about the condition.
National and State Resources Related to Disabilities Law
- Maryland Infants and Toddlers Program: Guidelines to Early Identification of Cerebral Palsy
School and IEP Resources
- Parents’ Place of Maryland
- Disability Rights Maryland
- The Maryland Association of Nonpublic Special Education Facilities (MANSEF)
- Financial Planning Resources
- Maryland Developmental Disabilities Council Financial Planning
Adolescent to Adulthood Transition
- Adolescent to Adult Transition Planning
- Guardianship in Maryland
- Financial Planning Guideline
- Vocational Counseling Resources
- The K&W Guide to Colleges for Students with Learning Differences
State and Federal Medical Coverage
- Maryland Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI)
- Maryland Developmental Disabilities Administration (DDA)
- Maryland Rare and Expensive Case Management (REM) Program
- The Maryland Model Waver Program: The Model Waiver allows medically fragile individuals who would otherwise be hospitalized and are certified as needing either hospital or nursing facility level of care to receive medically necessary and appropriate services in the community.
- Federal Healthcare Coverage
Employment Opportunities
- Maryland Division of Rehabilitation Services (DORS)
- The Arc Maryland: The Arc Maryland is the largest statewide nonprofit organization dedicated to the rights and quality of life of persons with I/DD and their families.
- Chimes Maryland: Chimes Maryland is the largest not-for-profit provider of community services for children and adults with intellectual and developmental disabilities, autism spectrum disorder, and other co-occurring disabilities.
- HR Pathways Hiring Program at Kennedy Krieger Institute: Inclusive hiring for individuals with neurodiverse conditions.
Legal Services
- Project HEAL (Health, Education, Advocacy, and Law): Project HEAL provides comprehensive advocacy and legal services for children with intellectual and developmental disabilities who are patients at Kennedy Krieger Institute and their families
Research Networks and Foundations
- Child Neurology Foundation
- Cerebral Palsy Research Network (CPRN)
- The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)
- Cerebral Palsy Foundation
- CPF Network Partners
Local Resources
- The Bennett Institute: The Bennett Institute Physically Challenged Sports Program and the Bennett Blazers offer adaptive sports programs for children and young adults ages 5-18.
- Low Intensity Support Services in Maryland (LISS): The Developmental Disabilities Administration's Low Intensity Support Services (LISS) Program serves children living at home with their family and adults with developmental and/or intellectual disabilities living in their own home in the community who are not receiving any support services from the DDA.
- Maryland Durable Medical Equipment Re-Use: The Maryland Department of Aging is providing durable medical equipment (DME) to Marylanders with any illness, injury, or disability, regardless of age, at no cost.
- DMV Equipment Loan Closet Directory
Foundations Supporting Individuals with Disabilities
Refer a Patient to Kennedy Krieger
Clinical Guidelines and Resources
- Developmental Biology and Structural Variation Branch (DBSVB)
- Birth Defects Initiative
- National Institute of Neurological Disorders and Stroke (NINDS)
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
- Gene Expression Database Project
- National Center on Birth Defects and Developmental Disabilities
- American Academy of Neurology (AAN) and Practice Parameters
- Diagnostic assessment of the child with cerebral palsy
- Pharmacologic treatment of spasticity in children and adolescents with cerebral palsy
- Medical treatment of infantile spasms
- American Academy of Pediatrics (AAP)
- AAP Professional Resources and Committee Reports
- Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsy
- Pharmacologic treatment of spasticity in children and adolescents with cerebral palsy
- The Pediatrician's Role in Development and Implementation of an Individual Education Plan (IEP) and/or an Individual Family Service Plan (IFSP)
- AACPDM Evidence Reports
- Neuroscience Research Support at NICHD
- NIH Blueprint for Neuroscience Research
- Learn more about the Strategic Plan for Cerebral Palsy Research
- NICHD Brain and Tissue Bank for Developmental Disorders
- Resources within the Division of Intramural Research
- Program in Perinatal Research and Obstetrics (PPRO)
- Section on Tissue Biophysics and Biomimetics (STBB)
- Intellectual and Developmental Disabilities Branch (IDDB)
- Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Centers (EKSIDDRCs)
- Pregnancy and Perinatology Branch (PPB)
- Maternal-Fetal Medicine Units (MFMU) Network
- National Center for Medical Rehabilitation Research (NCMRR)
- NIH Research Plan on Rehabilitation
- Spinal Cord and Musculoskeletal Disorders and Assistive Devices (SMAD) Program
- Medical Rehabilitation Research Infrastructure Network (MRRIN)
The Early Detection Network
- Children's Hospital of Philadelphia Cerebral Palsy Program
- Center for Cerebral Palsy at UCLA OIC
- Kennedy Krieger Institute Phelps Center
- Ann & Robert H. Lurie Children’s Hospital of Chicago
- UCLA Mattel Children’s Hospital
- University of Utah