We've compiled a list of helpful links to related resources for patients and their families:
- The Resource Finder: A Project of Kennedy Krieger Institute
- The Arc of the United States
- ASBAH - Association for Spina Bifida and Hydrocephalus
- Birth Defects Research for Children
- CDC - Spina Bifida
- Chesapeake Potomac Spina Bifida Association
- Children with Spina Bifida - A Resource Page for Parents & Professionals
- Family Voices
- Folic Acid Campaign, NCBDDD, CDC
- Genetic Alliance, Inc.
- International Federation for Hydrocephalus and Spina Bifida
- National Birth Defects Prevention Network
- National Center for Learning Disabilities
- National Information Center for Children and Youth with Disabilities
- National Institute of Neurological Disorders and Stroke (NINDS)
- National Organization on Disability
- NINDS Spina Bifida Information Page
- SCI Information Network
- Spina Bifida Association of America
- Spina Bifida Fact Sheet
- Spina Bifida and Hydrocephalus Association of Canada
- SpinaBifida.Net - Spina Bifida Web Sites