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Portable Health Profile Resources

These resources include information, tips, toolkits and guides about creating, compiling and storing healthcare records.

Create a Care Record

Use this Portable Health Profile to store information about yourself on this website, including information about any services you receive. You can allow family, friends, or caregivers to see your profile or keep it completely private. Begin by clicking “Create a Care Record,” and completing the form. Once your account is set up, you will be prompted to fill out your Care Record.

Healthcare.gov

This is a resource for finding insurance options, getting help using insurance, the healthcare law as it relates to you, comparing care providers, and prevention and wellness.

Healthfinder.gov

The U.S. Department of Health and Human Services provides frequently asked questions and answers regarding personal health records, the HIPAA Privacy Rule, and more.

Maryland Access Point (MAP)

Use this resource to explore healthcare options, search for resources and services in your area, and plan for future needs by accessing tools and guidance from Maryland Access Point.

Maryland Office for Genetics and People with Special Health Care Needs

My Health Care Notebook

My Health Care Notebook (Spanish)

Parents and caregivers play a central role in child’s care, and medical professionals rely on them to provide information about concerns and a child’s progress. It is helpful to have all information organized in one place to find it easily.  My Health Care Notebook has been designed by Office for Genetics and People with Special Healthcare Needs for parents and caregivers of a child with special health care needs.  

The National Center for Medical Home Implementation

The National Center for Medical Home Implementation is a cooperative agreement between the Maternal and Child Health Bureau and the American Academy of Pediatrics. This page includes tools, resources, and links to information that will assist families in successfully partnering with their child’s medical home to include a tool on building your care notebook.

National Disability Navigator Resource Collaborative

The mission of the National Disability Navigator Resource Collaborative (NDNRC) is to provide cross-disability information and support to Navigators and other enrollment specialists, thereby ensuring people with disabilities receive accurate information when selecting and enrolling in insurance through the Affordable Care Act Marketplaces.

Sample Health Record

This resource provides a list of information that is kept in an Internet-based personal health record.

Special Care Organizational Record for ADULTS with Special Healthcare Needs

The Special Care Organization Record for Adults is an organizing tool for families with an adult member with special healthcare needs. It is intended to help track and organize information in one central location and to make it easier for someone to care for your family member when you are unable to do so. Download the toolkit here.

Special Care Organizational Record for CHILDREN with Special Healthcare Needs

This toolkit is designed as an organizational tool to help you track and organize your child’s information to make it easier for someone to care for your child in your absence. Use the toolkit to capture important insurance information, emergency plans, and medical and educational information. Download the toolkit here.

Not Finding What You Need?

A Resource Coordinator is available to assist you in finding disability resources by phone or email:

• 800-390-3372
• TTY MD Relay 711
resourcefinder@kennedykrieger.org

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