Taking care of one’s health and well-being is important for individuals of all ages and abilities.

These resources include information, tips, toolkits, and guides pertaining to health insurance, healthcare records, health services, relationships, and safety. 

Wellness and Prevention resources

Use the links below to learn more about nutrition, recreation, safety and other resources available for individuals with disabilities.  

Academy of Nutrition and Dietetics

The Academy of Nutrition and Dietetics is committed to improving the nation's health and advancing the profession of dietetics through research, education and advocacy. Find more health-related information on the website.

Emergency Preparedness for Children with Special Needs

Preparing for an emergency is difficult for any parent, and as a parent caring for a child with special needs, you have extra things to think about. Use this document to help you reflect on your child’s needs and be prepared in the event of an emergency. 

National Center on Health, Physical Activity, and Disability (NCHPAD)

The National Center on Health, Physical Activity, and Disability (NCHPAD) seeks to help people with disabilities and other chronic health conditions achieve health benefits through increased participation in all types of physical and social activities, including fitness and aquatic activities, recreational and sports programs, adaptive equipment usage, and more. You can either browse the programs by name, state or country, or you can search by a specific zip code and list only the programs closest to you.

National Disability Navigator Resource Collaborative

The mission of the National Disability Navigator Resource Collaborative (NDNRC) is to provide cross-disability information and support to Navigators and other enrollment specialists, thereby ensuring people with disabilities receive accurate information when selecting and enrolling in insurance through the Affordable Care Act Marketplaces.

Romantic Relationships for Young Adults with Asperger’s Syndrome and High-Functioning Autism

This resource explains love and affection, special interests, and how to improve relationship skills among adolescents who would like a romantic relationship.

Safety Education Resources

This link provides free safety alerts, guides, brochures, handbooks and other materials which you can use to help spread consumer product safety information in your community.  

Portable Health Profile resources

These resources include information, tips, toolkits and guides about creating, compiling and storing healthcare records.

Healthcare.gov

This is a resource for finding insurance options, getting help using insurance, the healthcare law as it relates to you, comparing care providers, and prevention and wellness.

HealthFinder

The U.S. Department of Health and Human Services provides frequently asked questions and answers regarding personal health records, the HIPAA Privacy Rule, and more.

Maryland Access Point (MAP)

Use this resource to explore healthcare options, search for resources and services in your area, and plan for future needs by accessing tools and guidance from Maryland Access Point.

Maryland Office for Genetics and People with Special Health Care Needs

My Health Care Notebook

My Health Care Notebook (Spanish)

Parents and caregivers play a central role in child’s care, and medical professionals rely on them to provide information about concerns and a child’s progress. It is helpful to have all information organized in one place to find it easily.  My Health Care Notebook has been designed by Office for Genetics and People with Special Healthcare Needs for parents and caregivers of a child with special health care needs.  

The National Center for Medical Home Implementation

The National Center for Medical Home Implementation is a cooperative agreement between the Maternal and Child Health Bureau and the American Academy of Pediatrics. This page includes tools, resources, and links to information that will assist families in successfully partnering with their child’s medical home to include a tool on building your care notebook.

National Disability Navigator Resource Collaborative

The mission of the National Disability Navigator Resource Collaborative (NDNRC) is to provide cross-disability information and support to Navigators and other enrollment specialists, thereby ensuring people with disabilities receive accurate information when selecting and enrolling in insurance through the Affordable Care Act Marketplaces.

Sample Health Record

This resource provides a list of information that is kept in an Internet-based personal health record.

Special Care Organizational Record for ADULTS with Special Healthcare Needs

The Special Care Organization Record for Adults is an organizing tool for families with an adult member with special healthcare needs. It is intended to help track and organize information in one central location and to make it easier for someone to care for your family member when you are unable to do so. Download the toolkit here.

Special Care Organizational Record for CHILDREN with Special Healthcare Needs

This toolkit is designed as an organizational tool to help you track and organize your child’s information to make it easier for someone to care for your child in your absence. Use the toolkit to capture important insurance information, emergency plans, and medical and educational information. Download the toolkit here.

Sexual Health and Wellness Resources

Use the links below to learn for resources regarding sexual health and the developmental disability community.

7 LGBTQ Sex Facts You Probably Didn't Learn in High School Sex Ed   

Comprehensive sex education in the US has been a point of contention for decades and the problem of proper sex education is even worse for LGBTQ teens. 

Advocates for Youth  

Sexual health education for young people with disabilities – Research and resources for educators. 

AMAZE  

At AMAZE, you will find videos for young people, lesson plans, answers to some of 10- to 14-year-olds’ most common questions regarding puberty and sex education.nbsp;

Answer: Sex Ed, Honestly  

Answer is a national organization that provides and promotes unfettered access to comprehensive sexuality education for young people and the adults who teach them. 

AUCD Sexual Health Webinars for Self Advocates  

The purpose of the Sexual Health special interest group is to connect people in the AUCD network to each other, and to resources about disability and sexuality.

Children and Families Forum: Sex Ed for Young Adults With I/DD   

Unfortunately, for some individuals, specifically those with intellectual/developmental disabilities (I/DD), they do not receive the sexual health/sexuality education needed to make safe choices both in regard to sex and their bodies in general.

Circles

Circles Intimacy & Relationships 1 – teach students how to recognize social boundaries and avoid exploitation with the all-new edition of Circles Intimacy & Relationships – Level 1.

Disability Rights and Sexual Health 

Sexual and reproductive health are important parts of overall health; however, people with disabilities are not always given the resources they need to achieve it. 

Elevatus Training  

As national leaders in the field of sexuality and intellectual and developmental disability we offer evidence and trauma informed curriculum, online training, in-services and workshops to help professionals, educators, self-advocates and parents skillfully and confidently navigate the topic of sexuality.

FLASH Sexual Health Education Curriculum  

FLASH is a widely-used sexual health education curriculum developed by Public Health – Seattle & King County and designed to prevent teen pregnancy, STDs, and sexual violence. FLASH is available for elementary, middle, high school and special education classrooms.

Gender Unicorn  

The Gender Unicorn graphic from Trans Student Educational Resources was designed to provide resources regarding gender identity and expression, and to help providers create a safe environment for LGBTQ+ youth.

GLSEN  

GLSEN champions LGBTQ issues in K-12 education and works to ensure that LGBTQ students are able to learn and grow in a school environment that is free from bullying and harassment. Together we can transform our nation’s schools into the safe and affirming environment all youth deserve.

Impact of COVID-19 on Relationships in the Disability Community: Facts and Resources

An article by MCDD trainees Tracy Hincke and Keighly Little

LGBTQ+ Relationships: Sex Talk for Self-Advocates #6  

Join the AUCD Sexual Health Special Interest Group for Sex Talk for Self-Advocates Webinar #6: LGBTQ+ Relationships. A panel of sexuality educators and self-advocates will discuss questions and topics related to LGBTQ+ relationships for individuals with intellectual and developmental disabilities.

Kennedy Krieger Institute: Sexuality and Adults with Developmental Disabilities     

The topic of sexuality is one that’s a challenge for many people to talk about. The challenge is compounded when individuals have specialized learning needs.

Our Sexuality, Our Health: A Disabled Advocate's Guide to Relationships, Romance, Sexuality and Sexual Health   

This guide will highlight positive notions, generate creative thinking, and debunk some common misguided perceptions.

Reproductive Health Care for Women with Disabilities  

An AUCD presentation regarding reproductive health care for women with disabilities.

RespectAbility  

In collaboration with educator Terri Couwenhoven, RespectAbility has released a lengthy guide featuring resources for sexual education for children, teenagers and adults with disabilities, with a focus on those with intellectual and developmental disabilities.

Sexual Health Equity for Individuals with Intellectual and Developmental Disabilities 

Oregon Health & Science University provides resources for sexual health for individuals with I/DD.

Sexuality After Spinal Cord Injury  

Intended for mature audiences, this video series provides information on sex, love and intimacy after spinal cord injury.

Sexuality and Down Syndrome  

An FAQ on sexuality and Down syndrome from the National Down Syndrome Society.

Sexuality and Relationship Education: A Professional's Guide to Understanding, Preventing Issue, Supporting Sexuality and Responding to Inappropriate Behaviours  

Author Davida Hartman is a child psychologist and the clinical director and co-founder of The Children’s Clinic in Dublin, Ireland. Hartman is the author of a number of books which aim to support children and teenagers on the autism spectrum to reach their potential and live happy and fulfilled lives.

Sexuality Education for Students with Disabilities 

The Center for Parent Information and Resources provides a resource page addressing the development of sexuality.

SIECUS: Sex Ed for Social Change  

This website provides up-to-date information so that providers can teach the truth in sexual education.

Special Bridge  

Special Bridge is a private dating site and online social community designed to help meet the social and emotional needs of its members. Through a supportive and friendly environment, people of all ability levels can make new friends in a fun, private and welcoming setting. Whether you want to find a romantic relationship or a simple lasting friendship, Special Bridge can help its members find their perfect matches.

Stanley Ducharme, Ph.D.  

Dr. Ducharme is a clinical psychologist and consultant specializing in areas of sexual dysfunction, gender, physical disability, addictions, and relationship issues. He is located in Boston, MA.

Terri Couwenhoven, MS, CSE   

Terri Couwenhoven, MS, CSE is a well-known sex educator and author, specializing in the design and implementation of sexuality programs and resources for people with cognitive disabilities, their parents, and the professionals who support them.

Tom and Ellie, a Series of Books on Sexuality and Safety, by Kate E. Reynolds 

Kate E. Reynolds is a nurse specializing in sexual health and an author who has written related to autism since 2014.   

TSER - Trans Students Educational Resources Infographic Series  

Trans Student Educational Resources is a youth-led organization dedicated to transforming the educational environment for trans and gender non-conforming students through advocacy and empowerment.

What to Consider Before Having Sex in a Pandemic 

An article discussions sexuality during COVID-19.

Sexual Health Webinar Recording - Kennedy Krieger Institute

A panel of faculty and staff members from Kennedy Krieger Institute including clinicians, educators, researchers, and self-advocates explain how they work across disciplines to address sexual health education with patients, students, and families in a variety of settings at the Institute. The panelists discuss best practices which result in breaking down stigma, fear, and barriers in order to provide care to people who so often are left out of the conversation when it comes to sexual health and well-being.