The Kennedy Krieger Institute Pediatric Neurofibromatosis Program at the Johns Hopkins Comprehensive Neurofibromatosis Center is led by a dedicated core team embedded within the broader Johns Hopkins Comprehensive Neurofibromatosis Center, allowing families to benefit from coordinated, multidisciplinary expertise across both institutions.
Our Core Pediatric NF Team Includes:
Kelly Wypych, PA-C
Lauren Hargis
Together, our team provides comprehensive clinical evaluation, longitudinal care, and coordination of services for children with NF and related conditions.
We work closely with families to guide care across developmental stages and ensure timely access to appropriate services and subspecialty care.
As part of the larger Johns Hopkins Comprehensive Neurofibromatosis Center, we collaborate closely with specialists across Kennedy Krieger Institute and Johns Hopkins Medicine. This integrated model allows us to provide coordinated care addressing the full range of medical, developmental, and behavioral needs associated with neurofibromatosis.
Research and Collaboration
Our Pediatric NF Program collaborates closely with the Johns Hopkins Comprehensive Neurofibromatosis Center and participates in ongoing research aimed at improving outcomes for children with NF. Our integration of clinical care and research ensures that families benefit from the most current knowledge and emerging therapies.
Transitions to Adult Care
As children approach adolescence, we work closely with families to prepare for transition to adult care. At age 16, patients transition to the Johns Hopkins Comprehensive NF Center, where they continue receiving expert longitudinal medical care into adulthood.
This coordination transition ensures continuity of care across the lifespan.