FMR1 and Related Conditions X Syndrome Family Resources:
Web Sites:
- The National Fragile X Foundation
- FRAXA Research Foundation
- NIH Office of Rare Diseases
- National Organization for Rare Disorders
Suggested Reading:
Schopmeyer, Betty and Fonda Lowe. The Fragile X Child. San Diego: Singular, 1992.
Hagerman, Randi J. and Paul J. Hagerman. Fragile X Syndrome: Diagnosis, Treatment, and Research. Baltimore: The Johns Hopkins University Press, 2002.
Weber, Jayne D. Children with Fragile X Syndrome: A Parents’ Guide. Bethesda: Woodbine, 2000.
Dew-Hughes, Denise. Educating Children with Fragile X Syndrome: A Multi-Professional View. New York: RoutlededgeFalmer, 2002.
Parker, James N. and Philip M. Parker. The 2002 Official Patients’ Sourcebook on Fragile X Syndrome. San Diego: Icon Group International, 2002.