Dr. Paul Lipkin is the Director of Medical Informatics and the Interactive Autism Network at Kennedy Krieger Institute. He also provides clinical services in the Center for Development and Learning at the Institute. Dr. Lipkin is an Associate Professor of Pediatrics at the Johns Hopkins University School of Medicine.
Dr. Lipkin received his undergraduate degree from Rutgers University and attended medical school at Rutgers- New Jersey Medical School. He received his general pediatric training, focusing on primary care, at Sinai Hospital of Baltimore, followed by subspecialty training in developmental pediatrics at Johns Hopkins University and the Kennedy Krieger Institute. He is board-certified in Pediatrics, Neurodevelopmental Disabilities, and Developmental and Behavioral Pediatrics.
Dr. Lipkin joined the faculty of the Kennedy Krieger Institute and Johns Hopkins University in 1995. He is currently the Director of Medical Informatics and the Interactive Autism Network (IAN) at the Kennedy Krieger Institute (KKI), and is an Associate Professor of Pediatrics at the Johns Hopkins School of Medicine. As Director of IAN, he oversees the staff and operations of this patient- and family-powered online community and research platform and registry of over 50,000 participants that connects individuals on the autism spectrum and their families with researchers nationwide.
Prior to his current position, Dr. Lipkin served for fifteen years as the Director of KKI’s Center for Development and Learning. He has provided national leadership on children with special health care needs and disabilities, including autism and other neurodevelopmental disorders, through his work with the American Academy of Pediatrics (AAP), where he served as Chair of its Council on Children with Disabilities from 2002- 2007. He remains active in key AAP initiatives, including its guidelines on developmental and autism screening and implementation of IDEA. He was the recipient of the AAP’s Arnold J. Capute Award in 2011 for his efforts on behalf of children with disabilities. Dr. Lipkin served as a Robert Wood Johnson Foundation Health Policy Fellow in 2010-2011, working in the Office of the Secretary of Health and Human Services Kathleen Sebelius.
Dr. Lipkin’s clinical and research careers have both focused on the early identification, evaluation, and treatment of children and adolescents with developmental disabilities, including autism, learning, and attention disorders. Key focus areas include:
- Early identification of neurodevelopmental disorders in children, including autism spectrum disorder, with particular emphasis on screening in primary health care and related settings.
- Participant-powered research on autism and related disabilities, utilizing the internet (research informatics).
- Clinical management of neurodevelopmental disorders, including attention-deficit hyperactivity disorder (ADHD) and related learning disorders (LD).
- Neurodevelopmental and behavioral aspects of other medical conditions.
Dr. Lipkin is currently Principal Investigator for the Interactive Autism Network (IAN), a partnership project between Kennedy Krieger Institute and the Simons Foundation. He is also co-Principal Investigator with other faculty (J. Keily Law, R. Findling) on incorporation of IAN into PCORnet, the National Patient-Centered Clinical Research Network. Other current funding includes support from the Centers for Disease Control and Prevention (CDC) and the National Institutes of Health on projects focused on autism spectrum disorders in children and adults.
Anixt JS, Vaughn AJ, Powe NR, Lipkin PH (2016). Adolescent Perceptions of Outgrowing Childhood Attention-Deficit Hyperactivity Disorder: Relationship to Symptoms and Quality of Life. J Dev Behav Pediatr. 37(3), 196-204.
Jacobson LA, Koriakin T, Lipkin P, Boada R, Frijters JC, Lovett MW, Hill D, Willcutt E, Gottwald S, Wolf M, Bosson-Heenan J, Gruen JR, Mahone EM (2016). Executive Functions Contribute Uniquely to Reading Competence in Minority Youth. J Learn Disabil. , .
Lipkin PH, Okamoto J, Council on Children with Disabilities, Council on School Health (2015). The Individuals With Disabilities Education Act (IDEA) for Children With Special Educational Needs. Pediatrics. 136(6), e1650-62.
Gotham K, Marvin AR, Taylor JL, Warren Z, Anderson CM, Law PA, Law JK, Lipkin PH (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data. Autism. 19(7), 794-804.
Kramer I, Lipkin PH, Marvin AR, Law PA (2015). A Genetic Multimutation Model of Autism Spectrum Disorder Fits Disparate Twin Concordance Data from the USA and Canada. Int Sch Res Notices. 2015, 519828.
Noritz GH, Murphy NA, Neuromotor Screening Expert Panel (2013). Motor delays: early identification and evaluation. Pediatrics. 131(6), e2016-27.
Marino BS, Lipkin PH, Newburger JW, Peacock G, Gerdes M, Gaynor JW, Mussatto KA, Uzark K, Goldberg CS, Johnson WH Jr, Li J, Smith SE, Bellinger DC, Mahle WT, American Heart Association Congenital Heart Defects Committee, Council on Cardiovascular Disease in the Young, Council on Cardiovascular Nursing, and Stroke Council (2012). Neurodevelopmental outcomes in children with congenital heart disease: evaluation and management: a scientific statement from the American Heart Association. Circulation. 126(9), 1143-72.
Lipkin PH (2012). Lessons and opportunities from autism screening in high-risk children.Dev Med Child Neurol. 54(6), 485.
Lipkin PH, Hyman SL (2011). Should all children be screened for autism spectrum disorders? Yes: merging science, policy, and practice. Am Fam Physician. 84(4), 361-7.
King TM, Tandon SD, Macias MM, Healy JA, Duncan PM, Swigonski NL, Skipper SM, Lipkin PH (2010). Implementing developmental screening and referrals: lessons learned from a national project. Pediatrics. 125(2), 350-60.
Council on Children With Disabilities, Section on Developmental Behavioral Pediatrics, Bright Futures Steering Committee, Medical Home Initiatives for Children With Special Needs Project Advisory Committee (2006). Identifying infants and young children with developmental disorders in the medical home: an algorithm for developmental surveillance and screening. Pediatrics. 118(1), 405-20.