Who is treated in the Complex Rehabilitation Program at Kennedy Krieger?

During fiscal year 2019*, 32 patients were treated by the Complex Physical Rehabilitation Program at Kennedy Krieger. 

Below is the age breakdown of those patients:

A pie chart depicting the age breakdown of patients treated in the Complex Physical Rehabilitation Program at Kennedy Krieger during FY 2019

Diagnoses Treated

The Complex Physical Rehabilitation Program treats children and adolescents who, collectively, have a variety of diagnoses. 

Below is a breakdown of the most common diagnoses treated by the program.

A pie chart depicting a breakdown of the most common diagnoses treated by the Complex Physical Rehabilitation Program at Kennedy Krieger during FY 2019

Types of Patients Treated

Patients who are admitted to the Complex Physical Rehabilitation Program have limitations in at least one of the following areas: communication (understanding and speaking), moving around, performing daily self-care activities, engaging in activities of daily living (doing chores, eating), and participating in home, school and community activities.

  • Patients who are admitted to the Complex Physical Rehabilitation Program must be medically stable and able to participate in at least three hours of therapy per day. 
  • Patients with tracheostomies and those requiring mechanical ventilation or diaphragm pacing systems are welcome on the inpatient unit. 

Interdisciplinary Treatment Team

Patients with complex physical disorders may have complex needs. An experienced interdisciplinary treatment team works with every patient and his or her family. 

This inpatient team may include:

  • Child life therapists
  • Hospitalists
  • Nurse care managers
  • Nurse practitioners
  • Nurse technicians
  • Nurses
  • Occupational therapists
  • Orthopedists
  • Pediatric nutritionists
  • Pediatricians
  • Physiatrists
  • Physical therapists
  • Registered nurses
  • Seating and mobility specialists
  • Social workers
  • Therapeutic recreation therapists

Where do patients live who are seen by the Complex Physical Rehabilitation Program?

The majority of patients (84 percent) for the Complex Physical Rehabilitation Program are from Maryland. The remaining come from Washington, DC (3 percent) and Virginia (13 percent).

How much therapy do patients being treated in the Complex Physical Rehabilitation receive?

Patients being treated in the Complex Physical Rehabilitation Program have at least three hours of therapy daily.   

What happens if a patient gets acutely sick or has a medical emergency while an inpatient at Kennedy Krieger?

Kennedy Krieger has Advanced Life Support-certified medical staff members and nurses on-site 24 hours a day, seven days a week, with the equipment and processes in place to respond to medical emergencies. Due to our proximity to and affiliation with The Johns Hopkins Hospital, we are able to admit patients with intensive, but stable medical needs, such as those requiring a ventilator for breathing.

Occasionally, these more intensive medical needs require unplanned transfers to acute care.  In fiscal year 2019*, two patients in the Complex Physical Rehabilitation Program required an unplanned transfer to an acute care setting.

How are patients and their families involved in the care they receive from the Complex Physical Rehabilitation Program?

No one knows a patient better than his or her family.  Kennedy Krieger providers are committed to incorporating family-centered care. The best way to care for a patient is to include his or her family in the patient’s healthcare team. Family members are encouraged to participate in treatment planning, goal setting, family meetings, and education and training sessions.

How long do most inpatients receive treatment from the Complex Physical Rehabilitation Program?

Not everyone receives treatment for the same amount of time.  In fiscal year 2019*, the average length of stay for all patients in the Complex Physical Rehabilitation Program was 23 days.  This length of stay is shorter than comparable programs.

What kinds of improvements might patients receiving treatment from the Complex Physical Rehabilitation program be expected to make?

Kennedy Krieger Institute uses The Functional Independence Measure for Children (WeeFIM) for standardized pediatric outcomes measurement. This system is used by pediatric inpatient, outpatient, and community-based rehab programs worldwide and provides a simple, consistent, uniform tool that measures function in children.

During fiscal year 2019*:

  • 88 percent of patients reached or exceeded their WeeFIM goals during their inpatient stay.
  • Collectively, our patients had significant gains on all WeeFIM measurements from admission to discharge.
  • 100 percent of our patients in the Complex Physical Rehabilitation Program were discharged home.

What do patients and their families say about their experience at Kennedy Krieger Institute?

  • 100 percent of parents said the management of their child’s pain was average, good or excellent
  • 100 percent of parents said the safety of their child was average, good or excellent
  • 100 percent of parents said the overall services provided were average, good or excellent
  • 100 percent of parents said they would recommend Kennedy Krieger Institute to others

Does Kennedy Krieger have special accreditation?

Kennedy Krieger Institute is accredited by the Commission on the Accreditation of Rehabilitation Facilities (CARF) and The Joint Commission. Every three years, both organizations review the Institute to ensure all its programs meet or exceed the very high standards it sets for the care of its patients.
 

*Fiscal year 2019 is the time frame from July 1, 2018 – June 30, 2019.