Who is treated in the Community Rehabilitation Program at Kennedy Krieger?

During fiscal year 2019*, 170 patients were treated in the Community Rehabilitation program at Kennedy Krieger. 

Below is the age breakdown of those patients:

A pie chart depicting the age breakdown of patients treated in the Community Rehabilitation Program at Kennedy Krieger in FY 2019

Diagnoses Treated

The Community Rehabilitation Program treats infants, children and adolescents who, collectively, have a variety of diagnoses.

Below is a breakdown of the most common diagnoses treated by the Community Rehabilitation Program:

A pie chart depicting the breakdown of diagnoses treated in the Community Rehabilitation Program at Kennedy Krieger in FY 2019

Types of Patients Treated

The patients who participate in the Community Rehabilitation program have limitations in at least one of the following areas: communication (understanding and speaking), moving around, performing daily self-care activities, engaging in activities of daily living (doing chores, eating), and participating in home, school and community activities.

Interdisciplinary Treatment Team

Patients served in the Community Rehabilitation Program may have complex needs. An experienced interdisciplinary treatment team works with every patient and his or her family to address individual needs. 

This team may include:

  • Adaptive aquatic specialists
  • Neuropsychologists
  • Occupational therapists
  • Physiatrists
  • Physical therapists
  • Seating and mobility specialists
  • Social Workers
  • Special educators
  • Speech/language pathologists

Where do patients live who are seen by the Community Rehabilitation Program?

All of the patients treated in the Community Rehabilitation program are from Maryland.

Below is a breakdown of the counties in which we serve:

A pie chart depicting the breakdown of counties served by the Community Rehabilitation Program at Kennedy Krieger in FY 2019

How much therapy do patients being treated in the Community Rehabilitation Program receive?

Depending on the needs of the individual, patients in the Community Rehabilitation program receive an average of 2.5 hours of therapy per week.   

The treatment team evaluates each individual. Based on the results of these evaluations, the treatment team and the family develop a plan for community-based treatment. Each treatment plan falls within one of five therapy models, as follows:

  • Intensive Model - For patients needing intense therapeutic intervention to guide rapid changes following a medical intervention or newly acquired neurological or orthopedic issue. This model offers three or more visits each week, for three to four weeks.
  • Frequent Model - For patients who are continuously progressing toward their goals but still need specific therapeutic interventions. This model offers one to two visits each week, for three to four weeks.
  • Transitional Model - For patients who can work independently on their therapy goals but may still need monitoring to ensure their progress continues. This model offers visits every other week for approximately four weeks.
  • Periodic Model - For patients making slower progress, who need practice, but not intensive therapy, to continue toward their goals. This model offers monthly or quarterly visits.
  • Consultative Model - After patients are discharged from the Community Rehabilitation Program, follow-up and consultation can be provided for when a need or when a question arises. This model is offered on an as-needed basis.

*Please note that not all patients will go through each therapy model; for example, a patient might start therapy with the Transitional Model.               

How is a patient and his or her family involved in the care received from the Community Rehabilitation Program?

No one knows a patient better than his or her family.  Kennedy Krieger providers are committed to incorporating family-centered care. The best way to care for a patient is to include his or her family in the patient’s healthcare team. Family members are encouraged to participate in treatment planning, goal setting, family meetings, and education and training sessions.

How long do most patients receive treatment from the Community Rehabilitation Program?

Treatment varies from one patient to another based on their needs and goals. In fiscal year 2018*, the average length of treatment in the Community Rehabilitation program was 17 weeks.

What happens if a patient gets sick or has a medical emergency while at Kennedy Krieger?

Kennedy Krieger has a Basic Life Support-certified physician and/or a nurse on-site at all times when the clinic is open, with the equipment and processes in place to respond to medical emergencies.  If a patient becomes more seriously ill, or has a medical emergency, care can be obtained at The John Hopkins Hospital Pediatric Emergency Department.    If needed, an ambulance will be called for emergency transportation.   

Occasionally, these more intensive medical needs require unplanned transfers to acute care.  In fiscal year 2019*, there were three patients in the Community Rehabilitation Program that required an unplanned transfer to an acute care setting.

How long do most patients receive treatment from the Community Rehabilitation Program?

Treatment varies from one patient to another based on their needs and goals. In fiscal year 2019*, the average length of treatment in the Community Rehabilitation program was 20 weeks.

What kinds of improvements might patients receiving treatment from the Community Rehabilitation Program be expected to make?

During fiscal year 2019*:

  • 100 percent of patients sustained or improved their functional status
  • Most of our patients/families reported significant progress towards their selected goals.

What do patients and their families say about their experience with the Community Rehabilitation Program?

During fiscal year 2019*:

  • 100 percent were satisfied with their child’s progress
  • 100 percent would recommend our services to other
  • 100 percent were satisfied with the amount of communication from our staff and felt it was useful
  • 100 percent were satisfied with the discharge

Does Kennedy Krieger have special accreditation?

Kennedy Krieger Institute is accredited by the Commission on the Accreditation of Rehabilitation Facilities (CARF) and The Joint Commission. Every three years we are reviewed by both organizations to ensure that all our programs meet or exceed very high standards of care for our patients.
 

*Fiscal year 2019 is the time frame from July 1, 2018 – June 30, 2019.