The Neurobehavioral Continuum of Care provides treatment services for individuals with intellectual and developmental disabilities and a variety of severe behavior disorders. These include destructive behaviors such as self-injurious behavior (SIB), aggression, property destruction, pica, and noncompliance.
Continuum of Care
The continuum of care consists of the Outpatient Neurobehavioral Clinics and the Inpatient Neurobehavioral Unit (NBU. There is close collaboration and overlap of professional staff across the different programs, and ongoing discussion and evaluation with regards to level of care needed by persons served.
For more information, about the Neurobehavioral Inpatient Unit, visit the Neurobehavioral Inpatient Unit Outcome Data page.
Outpatient Neurobehavioral Unit
Who is treated in the Outpatient Neurobehavioral Clinics at Kennedy Krieger?
During fiscal year 2018*, 66 patients with severe behavior disorders were treated by the Outpatient Neurobehavioral Clinics at Kennedy Krieger.
Below is the age breakdown of those patients:
The Outpatient Neurobehavioral Clinics treat children, adolescents, and adults who, collectively, have a variety of diagnoses. Previous patient diagnoses include, but are not limited to:
- Attention deficit hyperactivity disorder
- Cerebral palsy
- Cornelia de Lange syndrome
- DiGeorge syndrome
- Disruptive behavior disorder
- Fragile X syndrome
- Intellectual disabilities
- Lesch-Nyhan syndrome
- Pervasive developmental disorder
- Prader-Willi syndrome
- Rett syndrome
- Sanfilippo syndrome
- Stereotypic movement disorder
Assessments are performed regarding of your child’s problem behaviors and an individualized treatment plan is designed to meet his/her needs. Families are an integral part of each child’s treatment, and are required to participate in their child’s treatment.
Interdisciplinary Treatment Team
Patients with severe behavior disorders may have complex needs. An experienced treatment team works with every patient and his or her family. Our treatment team consists of behavioral psychologists; and then based on the individual clinical needs of the patient, we collaborate with other disciplines or community providers on a case-by-case basis, including:
- Registered nurses
- Social Workers
- In-home Service Providers
Where do patients live who are seen by the Outpatient Neurobehavioral Clinics?
Last year, 77% of the patients treated in the Outpatient Neurobehavioral Clinics came from Maryland and 8% from Virginia. The remaining patients came from Washington DC, New Jersey, Delaware and Pennsylvania. An additional 3% of patients were international.
How much therapy do patients received while being treated in the Outpatient Neurobehavioral Clinics?
We offer several outpatient treatment programs within our clinic which provides flexibility and options for families and the patient.
- Intensive Outpatient Program – This program is designed to provide intensive behavioral therapy. Patients are seen approximately three to five hours per day, three to five days per week for up to 12 weeks. The typical patient in this program is seen five hours per day, five days per week for three weeks.
- Day Treatment – This program provides behavioral assessment and treatment services in the clinic on a weekly basis for four to 12 hours per week. The typical patient in this program is seen two hours per day, two days per week for 12 to 16 weeks.
- Post-discharge Follow-up – Following discharge for Maryland inpatients and outpatients, our staff may remain involved in the patient’s care in different capacities. Services vary depending on the patient’s needs and location. Generally, services are provided in the clinic and may include ongoing behavioral assessment and treatment services, phone consultations, or additional training for care providers to help them follow the patient’s behavioral program.
What happens if a patient gets sick or has a medical emergency while at Kennedy Krieger?
Kennedy Krieger has Basic Life Support-certified physician and/or a nurse on-site at all times when the clinic is open, with the equipment and processes in place to respond to medical emergencies. If a patient becomes more seriously ill, or has a medical emergency, care can be obtained at The John Hopkins Hospital Emergency Department. If needed, an ambulance will be called for emergency transportation.
Occasionally, these more intensive medical needs require unplanned transfers to acute care. In fiscal year 2018 , zero patients in the Outpatient Neurobehavioral Clinics required an unplanned transfer to an acute care setting.
How are patients and their families involved in the care received from the Outpatient Neurobehavioral Clinics?
No one knows a patient better than his or her family. Kennedy Krieger providers are committed to incorporating family-centered care. The best way to care for a patient is to include his or her family in the patient’s healthcare team. Family members are required to participate in treatment planning, goal setting, assessment and treatment sessions, family meetings, and education and training sessions.
How long do most patients receive treatment from the Outpatient Neurobehavioral Clinics?
Not everyone receives treatment for the same amount of time. In fiscal year 2018*, the average length of treatment for individuals with severe behavior disorders is 123 days.
What kinds of improvements might patients be expected to make while receiving treatment from the Outpatient Neurobehavioral Clinics?
Our outcome data support the effectiveness of our approach.
During fiscal year 2018:
- 88 percent of patients met their admission goals
- 97 percent of patients were discharged with at least one caregiver prepared to follow and maintain their treatment plan
- Average percent reductions of targeted problem behaviors – 86 percent
What do patients and their families say about their experience with the Outpatient Neurobehavioral Clinics?
94 percent of families reported overall satisfaction with their experience
Does Kennedy Krieger have special accreditation?
Kennedy Krieger Institute is accredited by the Commission on the Accreditation of Rehabilitation Facilities (CARF) and The Joint Commission. Every three years, both organizations review the Institute to ensure all its programs meet or exceed the very high standards it sets for the care of its patients.
*Fiscal year 2018 is the time frame from July 1, 2017 – June 30, 2018.