OCTOBER 24, 2016: Is there a link between older fathers and SWS?
OCTOBER 12, 2016: When should patients with Sturge-Weber syndrome consider surgery?
OCTOBER 2, 2015: I have Sturge-Weber syndrome brain involvement but have not had seizures in many years, so I am no longer taking seizure medication. Recently however, I have bad headaches where I can’t see well, I become disoriented and am not able to talk. What are your thoughts and what do you recommend?
NOVEMBER 14, 2014: My newborn has a port-wine birthmark on the forehead and the doctors are concerned about Sturge-Weber syndrome. The MRI of the brain is normal. Does that mean everything is OK and there is no brain involvement?
OCTOBER 10, 2014: The Sturge-Weber Syndrome Project has been re-funded for another five years through the Brain Vascular Malformation Consortium. What does this mean for future progress in Sturge-Weber syndrome clinical care?
SEPTEMBER 26, 2014: Electroencephalography (EEG) Evolution in Sturge-Weber Syndrome
SEPTEMBER 12, 2014: Can a woman with Sturge-Weber syndrome use the pill (oral contraception)?
Read our Archived Updates for more information on past questions and answers.
Want to know more about the exciting research going on at the Kennedy Krieger Institute to discover new therapies for Sturge-Weber syndrome?
Visit our Current Research section.
Institute Discovers the Cause of Sturge-Weber
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Dr. Comi's Updates
Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome.
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NOVEMBER 15, 2016
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