Holoprosencephaly and Related Malformations Center


Elaine Stashinko, Ph.D., R.N.
Program Director

About the Center:

The Carter Center for Brain Research in Holoprosencephaly and Related Malformations at the Kennedy Krieger Institute (KKI) is part of a national multicenter collaboration providing education/family support and clinical care for children with holoprosencephaly, as well as research on this rare disorder. There are three primary goals for this program:

  • Education and Family Support
  • Clinical Services
  • Research

The Carter Center was established with support by a grant from the Don and Linda Carter Foundation.

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