Question: The new data on Epidiolex looks exciting. Can my child be treated?
Epidiolex is not yet approved for clinical use and is currently only available in clinical trials. While other formulations of cannibidiol oil are available, it’s important for parents and patients to understand that these formulas do not contain the same ingredients as Epidiolex. and it is difficult to predict how patients with Sturge-Weber syndrome will respond to them. If other formulations are used, it is very important the patients’ physicians be made aware. Liver function and blood levels of other seizure medications must be monitored, and patients and parents need to report any side effects.
Though early findings are promising, more studies are needed to fully understand the safety and usefulness of Epidiolex for SWS.