New patients are first evaluated by a neurodevelopmental pediatrician or pediatric nurse practitioner to establish an accurate diagnosis and make initial recommendations for treatment. The diagnostic process may involve magnetic resonance imaging (MRI) of the brain and genetic testing under the direction of Kennedy Krieger’s Neurology and Neurogenetics Clinic as well as consultations with specialists from pediatric neurology, neurosurgery, genetics and ophthalmology. When appropriate, additional consultative services may be recommended.
Depending on the diagnosis, ongoing care and therapy may be provided by the Phelps Center, other programs at Kennedy Krieger, The Johns Hopkins Hospital or other medical institutions and community programs. As appropriate, parents and caregivers will be provided with information about planning for their child’s significant life transitions (i.e., from infant and toddler services to school-based services and from school-based services to adult services). Coordination with the child’s primary care physician is a critical part of the process and continues throughout the child’s life.