Who is treated in the Pediatric Pain Rehabilitation Program at Kennedy Krieger?

During fiscal year 2019*, 27 children, adolescents and young adults with chronic pain and/or functional disability were treated in the Pediatric Pain Rehabilitation Program at Kennedy Krieger.

Sixty-seven percent of the patients treated were female and 33% were male.

Below is the age breakdown of those patients:

A pie chart depicting the age breakdown of patients treated at the Pediatric Pain Rehabilitation Program at Kennedy Krieger during FY 2019

Diagnoses Treated

The Pediatric Pain Rehabilitation Program treats children and adolescents who have chronic pain and/or functional disability. Twenty-six percent of patients treated had limb pain while the remaining percentage had some other chronic pain condition.

Types of Patients Treated

Patients who are admitted to the Pediatric Pain Rehabilitation Program have limitations in at least one of the following areas: moving around, performing daily self-care activities, engaging in activities of daily living (doing chores, eating), and participating in home, school and community activities.

  • Patients who are admitted to the Pediatric Pain Rehabilitation Program must be medically stable and able to participate in at least three hours of therapy per day.
  • Patients with tracheostomies and those requiring mechanical ventilation or diaphragm pacing systems are welcome on the inpatient unit.

Interdisciplinary Treatment Team

Patients with chronic pain may have complex needs. An experienced interdisciplinary treatment team works with every patient and his or her family.

This inpatient team may include:

  • Behavioral psychologists
  • Child life therapists
  • Hospitalists
  • Neuropsychologists
  • Nurse care managers
  • Nurse practitioners
  • Nurse technicians
  • Nurses
  • Occupational therapists
  • Pediatric nutritionists
  • Pediatricians
  • Physiatrists
  • Physical therapists
  • Psychiatrists
  • Registered nurse
  • Social workers
  • Special educators
  • Speech/language pathologists
  • Therapeutic recreation therapists

Where do patients live who are seen by the Pediatric Pain Rehabilitation Program?

The majority of patients for the Pediatric Pain Rehabilitation Program Comprehensive Inpatient Rehabilitation Program are from Maryland.

Below is a breakdown of where the patients came from during FY 2019:

A pie chart depicting where patients seen by the Pediatric Pain Rehabilitation Program at Kennedy Krieger during FY 2019 live

How much therapy do patients receive while being treated in the Pediatric Pain Rehabilitation Program?

Patients being treated in the Pediatric Pain Rehabilitation Program have at least three hours of therapy daily.

What happens if a patient gets acutely sick or has a medical emergency while an inpatient at Kennedy Krieger?

Kennedy Krieger has Advanced Life Support-certified medical staff members and nurses on-site 24 hours a day, seven days a week, with the equipment and processes in place to respond to medical emergencies. Due to our proximity to and affiliation with The Johns Hopkins Hospital, we are able to admit patients with intensive, but stable medical needs, such as those requiring a ventilator for breathing.

Occasionally, these more intensive medical needs require unplanned transfers to acute care. However, no patients had medical emergencies requiring transfer to The Johns Hopkins Hospital in 2018 or 2019.

How are patients and their families involved in the care they receive from the Pediatric Pain Rehabilitation Program?

No one knows a patient better than his or her family. Kennedy Krieger providers are committed to incorporating family-centered care. The best way to care for a patient is to include his or her family in the patient’s healthcare team. Family members are encouraged to participate in treatment planning, goal setting, family meetings, and education and training sessions.

How long do most inpatients receive treatment from the Pediatric Pain Rehabilitation Program?

Not everyone receives treatment for the same amount of time. In fiscal year 2019*, the average length of stay for all patients in the Pediatric Pain Rehabilitation Program was 23 days

What kinds of improvements might patients receiving treatment from the Pediatric Pain Rehabilitation Program be expected to make?

Kennedy Krieger Institute uses The Functional Independence Measure for Children (WeeFIM) for standardized pediatric outcomes measurement. This system is used by pediatric inpatient, outpatient, and community-based rehab programs worldwide and provides a simple, consistent, uniform tool that measures function in children.

Gains made by patients in FY 2019*:

  • 96 percent of participants reached or exceeded their rehabilitation goals during their inpatient stay.
  • Our patients had significant gains on all WeeFIM domains and total score from admission to discharge.
  • Our patients have an average increase on their WeeFIM of 12.3 points between admission and discharge.
  • Our patients with chronic pain experienced a greater increase on total WeeFIM than those in similar pediatric rehabilitation hospitals (8.4 points).

What do patients and their families say about their experience at the Pediatric Pain Rehabilitation Program?

  • 95 percent of parents felt the management of their child's pain was average, good or excellent
  • 100 percent of parents felt the safety of their child was average, good or excellent
  • 92 percent of parents said their overall services were good or excellent
  • 100 percent of parents felt the care provided to their child by doctors or nurse practitioners was average, good or excellent

Does Kennedy Krieger have special accreditation?

Kennedy Krieger Institute is accredited by the Commission on the Accreditation of Rehabilitation Facilities (CARF) and The Joint Commission. Every three years, both organizations review the Institute to ensure all its programs meet or exceed the very high standards it sets for the care of its patients.
 

*Fiscal year 2019 is the time frame from July 1, 2018 – June 30, 2019.