How does the IDDRC support research at the Institute?

Historically, the Kennedy Krieger Institute IDDRC had been positioned as a core resource limited to investigators whose funded research was supported directly by the IDDRC Cores. For the renewal application for the current NICHD P50 grant that funds the IDDRC, we expanded on this this position, framing Kennedy Krieger Institute as a very large IDDRC. This reframing was implemented to reflect accurately the unique nature of Kennedy Krieger and its breadth of IDD-related investigation as well as the depth of institutional resources that creates a milieu and infrastructure providing direct and indirect support for essentially all IDD-related investigation, regardless of funding status. 

Everyone at the Institute engaged in IDD research is exceedingly likely to be capitalizing on institutional resources providing IDDRC supports since the Institute broadly supports the infrastructure that makes it possible to do IDD-related research. 

What constitutes IDDRC support?

As stated, the Institute is, effectively, one large IDDRC. As such, everyone doing IDD research or investigation at Kennedy Krieger is very likely to be capitalizing on IDDRC supports. 

One can view IDDRC as being either direct or indirect:

  • Direct – Support is received from an IDDRC Core, ranging from consultation, navigational services, or provision of Core resources/services (e.g., MRI scans, EEG, neuropsychological evaluation)
  • Indirect – *This accounts for the majority of IDDRC support at the Institute and applies broadly to virtually any research project that is IDD-related. 

What if I never received direct support from one of the IDDRC Cores’ service centers? Do I still need to associate the IDDRC grant number as having supported my work?

Yes! If your research is IDD-related and leverages Institute-based resources that make it possible to do said research (e.g., clinical data infrastructure, common laboratory equipment/space, tools, faculty and staff expertise, etc.), then it is likely to be capitalizing on IDDRC supports. You should reference the IDDRC as having partially supported any resulting products (e.g., peer-reviewed manuscripts, chapters, inventions) and activities (e.g., presentations).

Please remember to acknowledge and/or associate the IDDRC grant number (P50 HD 103538) in resulting work. Examples for how to do so are included on this page.

What is the IDDRC at Kennedy Krieger Institute’s source of funding and grant number?

The IDDRC at Kennedy Krieger Institute is NIH Funded by Eunice Kennedy Shriver National Institutes of Child Health and Human Development (NICHD): P50 HD103538.

How do I know if I am eligible for IDDRC support or consultation?

IDDRC support is now available to all projects in the field of intellectual and developmental disabilities (IDD, broadly defined) throughout Kennedy Krieger Institute, regardless of funding status. Eligibility is open to any Kennedy Krieger Institute or Johns Hopkins University faculty member engaged in research of relevance to IDD. Staff who are seeking IDDRC support should do so through the assigned faculty PI of the project. Graduate students and postdoctoral fellows are encouraged to access IDDRC resources through primary IDDRC investigators/mentors.

If your project is a pilot study involving human subjects, it may be eligible for pilot project funding through the Neuroimaging, Clinical Translational, and Behavioral Phenotyping Cores. An initial consultation with an IDDRC faculty member will help determine if these funds are applicable to your project.

Click here for more information regarding IDDRC support and services.

What type of support is provided by the IDDRC?

IDD research conducted at Kennedy Krieger, regardless of whether the work is supported directly by IDDRC core services or supported indirectly (such as via institutional structures and resources made available by the Institute for IDD research), is very likely to be capitalizing on IDDRC support, as the Institute’s broad supports for the infrastructure that makes it possible to do IDD-related research at the Institute is viewed as in-kind support of the IDDRC. Therefore, the IDDRC indirectly supports nearly all IDD-related work at the Institute.

A range of specialized services, including one-time consultation and navigation services, are available through the IDDRC’s Cores:

While the IDDRC grant itself does not provide pilot funding, we are able to direct investigators to the following resources at Kennedy Krieger and Johns Hopkins:

What is Pilot Funding Support through the IDDRC?

Through a collaboration with the Johns Hopkins Institute for Clinical and Translational Research (ICTR), the IDDRC is also able to provide funding for pilot studies involving human subjects research. The funding is reserved for pilot experiments involving human subjects studies in the Neuroimaging, Clinical Translational and Behavioral Phenotyping Cores.

There are two 6-month long pilot project support cycles each year. Applications for Support Cycle 1 (funding from May 1 – October 31) are collected between March 12 and April 1, and applications for Support Cycle 2 (funding from November 1 – April 30) are collected between September 12 and October 1. IRB approval, acknowledgement, or proof of IRB exemption is required as a condition of each pilot project at the time of application. Additionally, each supported project is required to complete two brief, pre-scheduled electronic project update questionnaires per support cycle.

Pilot Funding Support Cycles: Important Dates infographic.

I have an unfunded project idea that I am developing. Can I request a one-time consultation or navigational services?

Yes! Your initial consultation with an IDDRC faculty member may constitute the only support you receive from the IDDRC. If necessary, you may have an additional consultation set up to further discuss your project, but specific core service usage is not required. Regardless of the type of support received, even if it is just consultative or navigational in nature, you are required to acknowledge the IDDRC in any resulting publications and projects (see “How do I acknowledge the IDDRC…”questions below).  

How do I apply for IDDRC services?

Applications for any IDDRC-related services are collected through our online application portal. There are two types of applications to which investigators can apply:

  1. IDDRC Services Request Application. This application is for general IDDRC services including consultation and core support. Applications are reviewed on a rolling basis by Core Faculty.
  2. IDDRC Pilot Study Funding Proposal. This application is pilot studies involving human subjects research and made possible through a collaboration with the Johns Hopkins Institute for Clinical and Translational Research (ICTR). Applications are reviewed twice a year by a group committee, and application decisions are delivered in a letter sent via email. Application deadlines for the two funding cycles are October 1st and March 1st.

What is the application process?

  1. Submit an application for IDDRC services or pilot funding support via the online application portal.
  2. Upon submission, you will receive an email confirmation and a unique IDDRC ID# for your project. This number is critical and must be referenced in all related correspondence.
  3. After your application is submitted, an IDDRC core faculty member will contact you to provide consultation, assess project feasibility, and/or share next steps to accessing Center resources. If your project is determined to be ineligible for support, a faculty member will let you know at that time.

What are the application requirements?

  • IDDRC Services Request Application
    • General project details (title, PI information, IRB status, requested Cores)
    • Brief summary of requested support
    • Funding information (if applicable; includes grant #/foundation name, start/end dates for entire project funding period, current year and total direct costs, % effort)
    • Abstract (with explicit mention of IDD or a closely related topic)
    • Relevance to IDD
  • IDDRC Pilot Study Funding Proposal
    • *IRB approval, acknowledgement, or proof of IRB exemption is required as a condition of each pilot project at the time of application.
    • General project details (title, PI information, IRB status, requested Cores)
    • Condition/disease to be investigated
    • Significance (limit 250 words)
    • Hypothesis (limit 100 words)
    • Aims (limit 2)
    • Impact statement (limit 100 words)
    • Experimental design (limit 500 words)
    • References (limit 5) 

What responsibilities are expected of me as a supported investigator?

All supported IDDRC investigators, even those who only receive brief and/or one-time consultation, are required to acknowledge the IDDRC and grant number (P50 HD103538) in any publications and presentations related to your supported work (see questions below for specific instructions).

Additionally, supported investigators are required to complete a quarterly questionnaire assessing updates regarding the following related to their supported project:

  • New publications
  • New presentations
  • Changes in funding sources
  • Changes in project specifics
  • Satisfaction with core services and support

We request that supported investigators also complete a brief, online satisfaction questionnaire at least once during the duration of each supported project. This valuable feedback is both a requirement of our continued funding and critical to our ability to continue to provide quality services to Center-supported investigators.

How do I associate the IDDRC grant with my publication?

Note that all publications arising from NIH-funded research (e.g., IDDRC, P50 HD103538) are required to comply with the NIH Public Access Policy. The NIH Public Access Policy is a legal requirement and a term and condition of all NIH awards, regardless of IDDRC support. For information on when and how to comply with the NIH Public Access Policy, please visit this support page:

As an NIH-supported entity, the IDDRC grant/award must be associated with IDDRC-supported citations in PubMed and My Bibliography. To associate the IDDRC award with a citation in My Bibliography, please click here for detailed instructions from NCBI.

IMPORTANT: Be sure to get all publications associated with the IDDRC and ICTR grants into compliance with the NIH Public Access Policy as soon as possible. Any associated publications that are not in compliance may prevent the submission of the grant’s progress reports and/or ability to receive continued funding.

As a supported pilot investigator, how do I acknowledge the ICTR grant with my resulting publications and presentations?

If your project received IDDRC pilot funding support, you need to acknowledge BOTH the IDDRC grant and the ICTR’s grant with any publications resulting from the pilot project. This is because the funds allocated to your project were provided via the ICTR’s grant, while the IDDRC provided support for your project via administrative, consultative, and core services.

Please follow this guidance provided by the ICTR regarding the acknowledgment of support.

Should I still cite the IDDRC grant in my publications and associated funding, even if I did not directly work with an IDDRC faculty member or use specific core services?

Yes! We are asking that investigators at Kennedy Krieger Institute embrace the reframing of the IDDRC as an Institutional resource. Nearly all efforts at the Institute have capitalized on Institutional (therefore IDDRC) infrastructure, so while many projects do not have direct ties to NICHD funding, they have likely been supported by the Institute and IDDRC indirectly. Keep in mind that one of the criteria by which IDDRCs are judged is the effectiveness by which their institution leverages direct NICHD dollars, including through in-kind institutional support.

How do I acknowledge the IDDRC in my papers?

If you have received consultation or support from the Kennedy Krieger Institute/Johns Hopkins University Intellectual & Developmental Disabilities Research Center (IDDRC) as part of your research, please remember to acknowledge the IDDRC grant number (P50 HD103538) in all publications based on the work.

Examples: “This work was supported by P50 HD103538.” -OR- “This work was supported by the Intellectual and Developmental Disabilities Research Center at Kennedy Krieger Institute (NIH P50 HD103538)”

How do I acknowledge the IDDRC in my presentations?

To acknowledge the IDDRC in presentations related to your supported work, please include the IDDRC Acknowledgement Slide in your presentations, as well as the IDDRC grant number (P50 HD103538).

You may also include the IDDRC Services Slide in your presentations to provide additional information about IDDRC services.