Sturge-Weber Center Events

Get on Tap for Sturge-Weber Syndrome

Thursday, October 19
5-10 P.M.

The Nickel Taphouse
1604 Kelly Avenue, Baltimore, MD 21209

The Celebrate Hope Foundation and Paul Siegel, a patient at the Hunter-Nelson Sturge-Weber Center, are partnering together for the Get On Tap for Sturge-Weber Syndrome event on Thursday, October 19th at the Nickel Taphouse.

Attendees will be able to enjoy food and drinks and participate in a raffle and silent auction.

A portion of food and drink proceeds and 100% of the funds raised from the raffle and silent auction will be donated to the Hunter-Nelson Sturge-Weber Center at Kennedy Krieger Institute.

Golf Tournament Raises $30K+ for Sturge-Weber Syndrome Research

On October 1st, more than 140 golfers participated in Tropical Realty’s 12th Annual Charity Golf Tournament in Melbourne, Fla. Proceeds from the tournament benefit Sturge-Weber syndrome (SWS) research at Kennedy Krieger Institute. The weather was beautiful and golfers enjoyed the famous helicopter ball drop, fabulous door prizes, delicious food and great company. We are grateful to Mitch Ribak and his family and colleagues at Tropical Realty for all their efforts in raising funds for SWS. This year’s tournament raised more than $30,000 bringing their overall donation total to over $200,000. For more event photos, visit


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Hunter Nelson

Institute Discovers the Cause of Sturge-Weber

To learn more about our recent discovery View our press coverage

Dr. Comi's Updates

Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome. 


Sturge-Weber Center Events

Get on Tap for
Sturge-Weber Syndrome:

Thursday, October 19
Fall 2017:
Tropical Realty Charity Golf Tournament
More information to come!


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