Dr. Comi's Weekly Updates
Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome.
Institute Discovers Cause of Sturge-Weber
To learn more about our recent discovery -
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Hunter Nelson Sturge-Weber Syndrome Center
Sturge-Weber Syndrome is a rare disorder with abnormal blood vessels in the brain, skin and eye that can cause seizures, paralysis, strokes, migraines, learning problems, vision loss, and other health issues. The recent discovery of the gene that causes Sturge-Weber syndrome was made at the Kennedy Krieger Institute by Dr. Anne Comi and her collaborators. The research continues here with new clinical drug trials for Sturge-Weber syndrome under development and novel lab research targeting the gene mutation underway.
The Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute is dedicated to caring for patients with Sturge-Weber syndrome. The goals of the Hunter Nelson Sturge-Weber Center are to provide:
- Comprehensive clinical care of patients with Sturge-Weber syndrome
- Patient, family and physician medical educational services about Sturge-Weber syndrome
- Conduct clinical and translational laboratory research to improve future treatment for Sturge-Weber syndrome
The Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute was founded in Baltimore, MD in 2002 through the Kennedy Krieger’s University Center for Excellence in Developmental Disabilities Education, Research and Service (UCEDD) collaboration with Johns Hopkins University.