Hunter Nelson Sturge-Weber Syndrome Center

Sturge-Weber Research Scientists
A Medical Breakthrough Uncovers the Cause of SWS

Groundbreaking research at Kennedy Krieger revealed the genetic cause of SWS, offering families the promise of new treatments for the first time.
Sturge-Weber Research Scientists
Research: Leading the Way Toward New Treatments

Dr. Comi and her team of lab researchers are investigating novel drugs and targeted therapies to treat Sturge-Weber syndrome.
Interdisciplinary care for SWS provided by a team of physicians
Our Team: Advancing Research and Treatment for SWS

Our team of clinicians and researchers collaborate to offer comprehensive care and the latest in treatment for our patients.
Jenna Heck and Al DeCesaris
Help Us Discover New Treatments for Kids with SWS

There are many ways you can provide vital support to our research and help those with SWS, like Jenna. Learn More or Donate Now.

Sturge-Weber Syndrome is a rare disorder with abnormal blood vessels in the brain, skin and eye that can cause seizures, paralysis, strokes, migraines, learning problems, vision loss, and other health issues. The recent discovery of the gene that causes Sturge-Weber syndrome was made at the Kennedy Krieger Institute by Dr. Anne Comi and her collaborators. The research continues here with new clinical drug trials for Sturge-Weber syndrome under development and novel lab research targeting the gene mutation underway. 

The Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute is dedicated to caring for patients with Sturge-Weber syndrome. The goals of the Hunter Nelson Sturge-Weber Center are to provide:

  1. Comprehensive clinical care of patients with Sturge-Weber syndrome
  2. Patient, family and physician medical educational services about Sturge-Weber syndrome
  3. Conduct clinical and translational laboratory research to improve future treatment for Sturge-Weber syndrome


Create a Fundraising Page to Support the Center

Personal Fundraising Pages are another great way to help support the Center. Please check out the pages by Sarah Hansen and Lizzie Click to read their inspiring stories and find out why they give.

Sarah Hansen

Sarah Hansen

"I am dedicating my training to fundraising for the Hunter Nelson Sturge Weber Center at the Kennedy Krieger Institute."

Lizzie Click

Lizzie Click

"Lizzie is eager to see the recent discovery of the genetic cause of Sturge-Weber Syndrome translated into improved treatments, a better quality of life, and ultimately a cure."

Sarah Hansen

Alex Zaman

"We hope you will consider supporting Dr. Comi and others who have dedicated themselves to unraveling SWS so that Alex will have a bright future."

Learn more about creating a fundrasing page for your special occasion.

The Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute was founded in Baltimore, MD in 2002 through the Kennedy Krieger’s University Center for Excellence in Developmental Disabilities Education, Research and Service (UCEDD) collaboration with Johns Hopkins University.

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