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  1. Barth Syndrome Clinic

    ... under one roof. Who We Serve: We provide expert care for children and adults who have, or are suspected of having, Barth ... can affect many different systems in the body, treating a patient with Barth syndrome often requires the collaboration of a wide range of ...

    Anonymous (not verified) - 2016-09-01 15:27

  2. NIH Expansion of Rare Diseases Clinical Research Network to Include Kennedy Krieger Institute

    ... over 5,000 patients in 37 clinical studies in rare diseases. Patient recruitment for clinical studies is a fundamental challenge in rare ... community, including patients and their families and health care professionals, provides information on rare disease research, consortium ...

    Anonymous (not verified) - 2014-08-06 09:50

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