Status message

Active context: patient_care_menu

Sickle Cell Neurodevelopmental Clinic

Kennedy Krieger Institute • 801 North Broadway • Baltimore, MD 21205

Co-Directors:

Michael V. Johnston, M.D.
Eboni I. Lance, M.D.

About Our Program:

The Kennedy Krieger Institute Sickle Cell Disease Neurodevelopmental Clinic will assess the neurological and developmental functioning of children with sickle cell disease. Each patient will receive a full neurodevelopmental evaluation, including complete neurological examination, developmental testing, review of any outside imaging/testing, and suggestions for services/further evaluations as indicated. Our team will coordinate care with the patient’s primary care providers (pediatricians/hematologists), an efficient approach that allows our team to expedite the next steps for laboratory evaluation, appropriate referrals, and patient management.

Additional medical consultation is available as needed from pediatric physicians trained in neurogenetics, sleep medicine, psychiatry, and rehabilitation.

Primary Program Goals:

Children with sickle cell disease quite commonly have associated neurological and developmental complications, including strokes, seizures, and cognitive dysfunction. In addition, attention deficit hyperactivity disorder, specific learning disabilities, language issues, and executive dysfunction may also be seen and require additional assistance to optimize functional abilities. These conditions severely impact these children’s functional independence, quality of life, and educational pursuits, as well as increase their risk of future complications. Early recognition, evaluation, and treatment of neurodevelopmental disorders will increase compliance with therapeutic regimens, minimize the need for other consultation, improve mental health outcomes for children with sickle cell disease and help these children reach their fullest potential.

Hours of Operation:

Weekdays, by appointment only. 

Contact:

Medical Director: Dr. Eboni Lance

Clinic Coordinator Pat Rowe
Phone: (443) 923-9150
Email: SickleCell@kennedykrieger.org

Appointments & Referrals

Primary Diagnoses Served

Additional Diagnoses Served

FIND A SPECIALIST

Publications

Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.

 

Resource Finder

 

A free resource that provides access to information and support for individuals and families living with developmental disabilities.