Why I Donate

Coast-to-Coast Fundraiser

"Crossing America For A Cure was far more than just a fundraiser. It was a way to bring hope to the countless individuals suffering with SWS. It was a way to inspire others to join the fight. And it was a way to further the efforts of finding a cure."

- Al DeCesaris


Lola Happel

"We have been involved with Dr. Comi since Lola was born in 2006. Over the past several years, Dr. Comi has been extremely helpful and has worked tirelessly to help our Sturge Weber Syndrome children. Each year our donations have increased and will continue to increase as we kinow it's just money now that is standing in the way of discovery. We donate because we will do anything in our power to give Dr. Comi and Kennedy Krieger Institute what is needed to help us find better treatments and hopefully a cure someday for Lola and our extended SWS family."

- Mitch and Jeanette Ribak


"I am delighted to support the work of Kennedy Krieger because of the personalized attention Dr. Comi and her team so willingly provide. I am confident my support of Kennedy Krieger will change lives and make a difference in the quality of life for those afflicted with this condition."

- Mrs. Michele Wanger


Annabelle Faneca swimming with friends“We are excited about the new possibilities for Anabelle and others with Sturge Weber through the works of Dr. Comi. We decided that we were in denial long enough about the severity and constant care needed for a child with Sturge Weber, and decided in our last hospital stay to get more involved. We started a foundation with 100% of proceeds to be donated to Dr. Comi's clinical trials. We urge others to contribute as well.  We even packed up from our hometown of New Orleans to be closer to Dr. Comi for her expertise in Sturge Weber. Through trials and tribulations, we realized that it was taking a gamble with our child's life not seeing Dr. Comi regularly.”

- Julie Faneca

Help Children with Sturge-Weber Syndrome

Helpk Kids with Sturge-Weber Syndrome

Give to Sturge-Weber Syndrome research and help children enjoy fuller lives through improved diagnosis, care, and education.

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Sturge Weber Fundraising Thermometer

Hunter Nelson

Institute Discovers the Cause of Sturge-Weber

To learn more about our recent discovery View our press coverage

Dr. Comi's Updates

Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome. 

SUBMIT A QUESTION FOR DR. COMI

Sturge-Weber Center Events

Fall 2017:

Tropical Realty Charity Golf Tournament

More information to come!
 

 

Publications

Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.