Dr. Comi's Updates

This page will announce recent research findings, highlight important information, and post questions and answers of general interest to individuals and families affected by Sturge-Weber syndrome. The page will be updated every week. Readers can find previous updates on the Archived Updates page.

DECEMBER 5, 2016

Question: My child has Sturge-Weber syndrome and seems to have more trouble with migraines, seizures or strokes right around the holidays.  Why does this happen, and what can I do to prevent these issues?

The holidays are a wonderful time to celebrate with family and friends. However, the holiday season can also involve changes in daily routine that can be disruptive for children. Unanticipated changes, such as trying new foods, eating and sleeping at irregular times, forgetting to take medications, and visiting unfamiliar climates, may cause stress and increase your child’s likelihood of experiencing migraines or seizures. Despite the difference in routine, it is important to pay attention to your child’s eating and sleeping schedule, avoid excessive time in crowds and extreme weather conditions, and ensure medications are properly administered.

Maintaining normalcy in these upcoming weeks will reduce your child’s risk of suffering from migraines, seizures, and strokes, allowing them to fully enjoy the holiday season.

Check back for new posts and up-to-date information from Sturge-Weber syndrome expert Dr. Anne Comi. 

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Read our Archived Updates for more information on past questions and answers.

Note: These updates are not intended to address individual patient issues.  If you have specific patient questions for Dr. Comi, please use the Contact Dr. Comi form and indicate that your question is private in nature.


Want to know more about the exciting research going on at the Kennedy Krieger Institute to discover new therapies for Sturge-Weber syndrome?

Visit our Current Research section.


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Dr. Comi's Updates

Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome. 


Sturge-Weber Center Events

OCTOBER 1, 2016
Tropical Realty Charity Golf Tournament

NOVEMBER 15, 2016
Holiday Boutique



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