Dr. Comi's Updates

This page will announce recent research findings, highlight important information, and post questions and answers of general interest to individuals and families affected by Sturge-Weber syndrome. The page will be updated every week. Readers can find previous updates on the Archived Updates page.

DECEMBER 1, 2017

Question: What is the new mutlidisciplinary SWS clinic at the Kennedy Krieger Institute?

Kennedy Krieger’s new multidisciplinary SWS clinic will open its doors on Friday, December 1 and will continue to be open for appointments on the first Friday morning of every month. The clinic will consist of a specialized, interdisciplinary team of specialists, with each physician specializing in a specific aspect of SWS:

  • Neurology (Dr. Comi)
  • Medical Rehabilitation (Dr. Suskauer)
  • Neuropsychology (Dr. Zabel)
  • Occupational Therapy and Assessments (Teressa Reidy)

The team will collaborate to ensure each patient receives a customized and in-depth assessment of their neurodevelopmental needs and an individualized treatment plan. All patients will receive a customized treatment letter, which can be shared with other providers or taken to the emergency room if needed. 

Appointments are already being made and we are considering adding other specialties to this SWS clinic in the future.

For further information or to schedule an appointment, please contact Dr. Comi at comi@kennedykrieger.org or call Kelly Harmon at 443-923-9127.

Check back for new posts and up-to-date information from Sturge-Weber syndrome expert Dr. Anne Comi. 

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Read our Archived Updates for more information on past questions and answers.

Note: These updates are not intended to address individual patient issues.  If you have specific patient questions for Dr. Comi, please use the Contact Dr. Comi form and indicate that your question is private in nature.


Want to know more about the exciting research going on at the Kennedy Krieger Institute to discover new therapies for Sturge-Weber syndrome?

Visit our Current Research section.


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Dr. Comi's Updates

Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome. 


Tribute to Hunter Nelson

Hunter Nelson
In Memory of
Hunter Andrews Nelson
November 5, 1999 -
May 29, 2005

The dream for a cure lives on...


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