Completed Research Studies

Our research has three main goals:

1) To better understand how to diagnose and treat the complications of Sturge-Weber syndrome (SWS),

2) To develop better safe and non-invasive tools to diagnose and monitor disease progression

3) To improve our understanding of the underlying abnormalities in SWS (pathogenesis).

From the beginning, one of the purposes of the Center has been to bring the different experts together so that they can learn from each other, find new ways to collaborate, and develop both new research questions and new treatment strategies. Another mandate upon all members of the Center is to publish their clinical experience and research so that other patients and physicians can benefit from this work.

Read about our completed studies to:

Improve Diagnosis and Monitoring of Sturge-Weber syndrome
Improve Clinical Care of Sturge-Weber syndrome

Understand the Pathogenesis of Sturge-Weber syndrome

Help Children with Sturge-Weber Syndrome

Helpk Kids with Sturge-Weber Syndrome

Give to Sturge-Weber Syndrome research and help children enjoy fuller lives through improved diagnosis, care, and education.

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Sturge Weber Fundraising Thermometer

Hunter Nelson

Institute Discovers the Cause of Sturge-Weber

To learn more about our recent discovery View our press coverage

Dr. Comi's Updates

Dr. Comi announces research findings, posts important information, and answers questions of general interest to families living with Sturge-Weber syndrome. 


Sturge-Weber Center Events

Fall 2017:

Tropical Realty Charity Golf Tournament

More information to come!



Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.