OI:Introducing the Osteogenesis Imperfecta Registry
ALT TITLE: New OI Registry Established
3.1.06 - An exciting new database has been developed to create an up-to-date listing of people with OI. This list contains essential information about the history and condition of individuals with OI and is directed by the individual participants consenting to participate in this database. The information supplied by participants is kept confidential and only shared with investigators doing approved research with the individual participant’s consent to do so.
By sharing your information with other individuals with OI you will help stimulate further research into OI and enhance progress toward a better understanding of, and possible breakthroughs in medical treatment for individuals with OI. To get involved and participate in this research study, register here.
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