Center for Genetic Muscle Disorders: Patient Stories

A Family's Journey: Collin and Lilleen's Story

Collin and His Mom LilleenIt's 1976 and flash bulbs pop as eager relatives urge seven-year-old Lilleen Walters to smile for the camera. Feeling fancy in her flower girl dress, she fights to curve her lips into a smile to please the wedding guests, but her muscles won't obey. Days and months go by, and Lilleen still can't smile. Read Full Story...


Fear Is To Be Conquered: Ben's Story

Ben CumboFor Ben Cumbo, a diagnosis of Duchenne muscular dystrophy (DMD) meant a future in the spotlight -- literally. As a National Goodwill Ambassador for the Muscular Dystrophy Association (MDA), Ben and his parents traveled around the country to raise awareness and funds. Read Full Story...


Living with Muscular Dystrophy: Jane's Story

Jane Lockwood with Her MomBy the time she was in second grade, Jane Lockwood was already being teased by her classmates who didn't understand why the young girl was allowed to sit out during P.E. classes while everyone else had to run. And they certainly didn't approve. So, with her mom's help, she sat down and wrote a letter. Then she read it aloud to her classmates: "I have muscular dystrophy," she explained. Read Full Story...


Center Families & Staff Run to End Duchenne

JUNE 18, 2016

Runners at the Dash for Duchenne raise funds for Team Saij which donated $70,000 to the Center for Genetic Muscle Disorders

"In My Mind" Artwork Exhibit

A collection of artwork by individuals with Duchenne muscular dystrophy representing a wide array of interests, techniques, styles, and perspectives.

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A free resource that provides access to information and support for individuals and families living with developmental disabilities.