We Need Your Input

If you or your loved one has a leukodystrophy, we invite you to take a brief survey. Your input will help us ensure that our new center meets the needs of children and adults with leukodystrophies. Based on the results of this survey and other stakeholder input, we plan to invite interested stakeholders to a roundtable discussion at Kennedy Krieger Institute in the coming year.

If you are a parent or caregiver of a leukodystrophy patient -


If you are an adult with a leukodystrophy -



Connect With Us

If you'd like to receive updates on the development of the new center and leukodystrophy research initiatives, please complete this form.

Appointments & Referrals

Resource Finder


A free resource that provides access to information and support for individuals and families living with developmental disabilities.