Privacy Policy

Web Site User Privacy Rights

Kennedy Krieger Institute is strongly committed to protecting the privacy of its online users.  Kennedy Krieger Institute believes that privacy on the web is important, and we encourage you to read our privacy policy carefully, so that you will clearly understand our commitment and our method of collecting and using information.  This Privacy Policy discloses how we collect information and how we use it for the websites of Kennedy Krieger Institute and its related entities and their social media platforms, Kennedy Krieger sanctioned Facebook, Twitter and You Tube pages, and any other Kennedy Krieger sanctioned online media in which we participate.  We do not collect personally identifiable information about individuals, except when it is voluntarily provided by you.  We do not share voluntarily provided, personally identifiable information for any purpose other than its intended use, except as described below.  While we have many security measures to protect electronically transmitted information and frequently review and try to improve the security of our site, we can't guarantee that a third party won't gain access to information provided to this Web site.  This privacy statement, updated July 13, 2016, describes the information we collect and how we use it.

Information Collection and Use

Web log file data

We collect some basic web log file data about site visitors.  This information includes domain names, web site traffic patterns and server usage statistics.  This information is used for site management and administration and to improve the content and overall performance and user-experience on our site.

Data Security

Kennedy Krieger Institute makes every reasonable effort to ensure that all of the transactions that occur on our web site are secure.  We store personally identifiable data with Secure Socket Layer (SSL) encryption to protect information you may submit on our site.  SSL is the industry standard protocol. 

Online Forms

Kennedy Krieger Institute provides forms on our web site which may request confidential protected health information.  These online forms are located on a secure site.  We adhere to the requirements of the Health Insurance Portability and Accountability Act of 1996 (HIPAA), which ensures security and privacy of an individual's health information.  For your convenience, a printable version of the form is also available, if preferred.

Subscription to newsletter or press releases

If you subscribe to a newsletter, publication or press release published by Kennedy Krieger Institute and distributed via email, we will keep your email address in a private distribution list.  Messages sent electronically do not reveal recipient's email addresses or any other personal information.  Kennedy Krieger Institute will only send messages to individuals who have opted-in to subscribe and who have provided their email addresses to us directly.  We only add individuals at their request.  At any time, you may opt-out by using the unsubscribe link provided on our web site and in the publication email, which will remove your information from the distribution list for the publication.

"Cookies" and how we use them

Cookies are packets of information that a web site transfers to a user's computer for record-keeping purposes.  They are a means of keeping track of users' preferences for content and alerting them to new content areas.  The data collected may be used to show relevant Kennedy Krieger Institute content on other websites.  Additionally, the cookies may be used to share other non-identifiable demographic information.  Most browsers allow you to turn off cookies if you do not want them tracking your preferences.  The Kennedy Krieger Institute website does set and access cookies.  They are used only to enhance the usability of the site.  You can still use this site if you turn the cookies off.

Donations and Fundraising Events

When you donate to Kennedy Krieger Institute or register for a fundraising event, we ask you to voluntarily provide your name, address, telephone number, email address and credit card number so we can process your donation or event registration, send you a receipt or confirmation and communicate with you if necessary.  If you'd like, you can provide that information another way (by phone or regular mail).  When you make a gift on our site, your information goes into a database maintained by us and we may then send you email or mailings about other opportunities to support the hospital.  You may opt out using any of the opt-out methods, such as check-box opt-outs, included in any fundraising solicitation.

Third-Party Service Providers

Kennedy Krieger Institute may engage reputable third-party vendors to help us manage our web sites and allow us to better service our patients and visitors.  The hospital never shares with third parties any personally identifiable information you provide when making a donation online, except as required by law.

Links to other sites

This site has links to other sites we think may be of interest to our visitors.  Their purpose is to provide visitors with convenient access to other sites that might interest them.  A link to another site does not imply an endorsement of the site's content or services.  We are not responsible for the privacy practices of sites not owned by Kennedy Krieger Institute.  We encourage you to be aware of that when you leave our site and to read privacy statements at any sites that collect personally identifiable data.

E-mail communication

Kennedy Krieger Institute does not collect your email address unless you voluntarily submit it to us or choose to communicate with us via email.  We do not sell or rent any email addresses.  We try to respond to email messages requiring a response within ten business days.  If you email the hospital, your message and email address will be forwarded to the appropriate department or program within the hospital.  Please do not email patient health information, as that information is confidential and should only be discussed with your physician.

How we use the information

Kennedy Krieger Institute uses the information you provide to fulfill your online request, facilitate customer service and inform you of our programs and events.

We do not rent or sell visitors' personal information to third parties, such as marketers.

We inform the companies that help the Kennedy Krieger Institute with donations made by credit card that they may not share or use personally identifiable information for any other purpose.

We do not share with any third-party any personally identifiable information you provide with gifts in honor or memory of a loved one.

We do not share any personally identifiable information we may collect in surveys, although we may share aggregated survey results with analysts, as described above.  The aggregate data cannot be used to identify individuals and participation in the survey is voluntary.

It is possible that we could be forced to disclose personally identifiable user information in response to a search warrant, subpoena, or court order; that can happen to any organization keeping records.  Disclosures may also be appropriate to protect our legal rights and the security or integrity of our Web site, or to avoid liability.  Those kinds of disclosures are highly unlikely, but possible.

Policy changes

Kennedy Krieger Institute necessarily reserves the right to change the policy from time to time, without advance notice.  We will attempt to  post substantive changes to our privacy policy on all sites owned by Kennedy Krieger Institute.

Deletion and removal of information

We maintain backup files as a protection against natural disasters, equipment failures, or other disruptions.  Backup files protect you and us because they lower the risk of losing valuable data.  Removing a record from our main files does not remove that record from any backup systems.  It may take up to six months before all information in a backup record is completely erased through the normal recycling of backup files.  In the meantime, as long as backup records exist, they receive the same privacy and security protections as our other records.

Children’s Privacy

We are committed to protecting the privacy of children.  This website is intended for adults and young adults age 13 and over.  It is not intended for or designed to attract persons under the age of 13.  We do not permit registration by, nor do we collect personally identifiable information from, any person we actually know to be under the age of 13.

Publications

Read inspiring stories, news and updates about the Institute's patient care, research, special education, professional training, and community programs.

 

Resource Finder

 

A free resource that provides access to information and support for individuals and families living with developmental disabilities.