Sturge-Weber Syndrome (SWS)

(Baltimore, Md) - Sturge-Weber Syndrome is a disease characterized by a facial birthmark, or "port wine stain," in association with abnormal blood vessels on the surface of the brain, glaucoma or both. Seizures, beginning often in infancy, are the most common symptom, followed by weakening or loss of the use of one side of the body (hemiparesis), vision impairments and delays in motor and cognitive skill development.

Baltimore, MD - The Chesapeake Bay will be rockin' and rollin' at the annual Bands on the Bay event, Sunday, April 26. A music-filled afternoon for the entire family, Bands on the Bay will feature the Doug Segree Band and Orlando Phillips, the former lead vocalist of the Caribbean music group Mama Jama. NFL Pro Bowler and current New York Jets player Alan Faneca will make a special appearance while guests enjoy the live music and great food and drink.

(Baltimore, MD) - The Hunter Nelson Sturge Weber Center at the Kennedy Krieger Institute introduces a multidisciplinary team of specialists to children with this rare and debilitating disease. Directed by Dr. Anne Comi, the Center's unique combination of faculty, including specialists in neurology, epileptology, ophthalmology, dermatology, neuroradiology, rehabilitative medicine, endocrinology and psychiatry, is vital for researching and treating a disease that affects multiple bodily systems.

(Baltimore, MD) - A special day of festive music on the waterfront will raise funds in honor of Jenna Heck, a toddler who was born with a rare condition called Sturge-Weber Syndrome. "Bands on the Bay" is an afternoon of exciting musical entertainment, fantastic silent and live auctions, and delicious food, beer, and wine.

The Chesapeake Bay was brought to life on Sunday, April 25, for the fifth annual Bands on the Bay event. Featuring the sounds of live music, silent and live auctions, and delicious food and drinks, Bands on the Bay is a fundraiser organized by friends and family to honor Jenna Heck, who was diagnosed with Sturge-Weber Syndrome, a disorder characterized by a facial birthmark and neurological abnormalities.