Albright Hereditary Osteodystrophy

Kennedy Krieger Institute to Observe Rare Disease Day

February 13, 2012

(Baltimore, MD) -- Kennedy Krieger Institute will join the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 29. The purpose is to focus attention on the needs of patients and families affected by rare diseases.

"This is a global observance," said Peter L. Saltonstall, president and CEO of NORD. "Individuals and organizations around the world will all be sharing stories of how rare diseases affect their lives."

The challenges of living with a rare disease, he said, include:

Kennedy Krieger Institute Opens First Clinic for Albright Hereditary Osteodystrophy; Dr. Emily Germain-Lee Brings New Expertise and Research to the Institute

December 28, 2010
National news network to air story on families affected by this rare genetic condition

(Baltimore, MD) - Kennedy Krieger Institute announced the opening of a new clinic for the treatment and research of Albright hereditary osteodystrophy (AHO), a rare genetic disorder affecting the bones, skin and hormone-producing tissues. Under the direction of Dr. Emily Germain-Lee, the clinic will provide expert care to children and adults with the disorder, as well as conduct research to expand knowledge of AHO and identify new treatment options. Dr.

Albright Hereditary Osteodystrophy

To find patient care programs and faculty treating albright hereditary osteodystrophy at Kennedy Krieger Institute, please see the right-hand column below. Additional helpful information, including definitions, symptoms, Institute press releases, Potential magazine articles, and other resources outside the Institute, have also been provided for readers on this page.

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