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Resource Finder at Kennedy Krieger Institute
Submitted by admin on June 23, 2011 - 3:08pm
A free resource that provides access to information and support for individuals and families living with developmental disabilities.
A Retrospective Study to Characterize the Natural History of Childhood Cerebral X-Linked Adrenoleukodystrophy and to Investigate the Influence of Allogeneic Transplantation on Affected Subjects
Principal Investigator: Gerald Raymond
This is a retrospective study designed to:
- Collect specific and sufficient data necessary to characterize the natural history of disease in subjects with untreated childhood cerebral ALD
- To collect efficacy and safety date from childhood cerebral ALD subjects that were treated with hematopoietic cell transplantation (HCT)

