Verification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry.

TitleVerification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry.
Publication TypeJournal Article
Year of Publication2012
AuthorsDaniels AM, Rosenberg RE, Anderson C, Law KJ, Marvin AR, Law PA
JournalJournal of autism and developmental disorders
Volume42
Issue2
Pagination257-65
Date Published2012 Feb
Abstract

Growing interest in autism spectrum disorder (ASD) research requires increasingly large samples to uncover epidemiologic trends; such a large dataset is available in a national, web-based autism registry, the Interactive Autism Network (IAN). The objective of this study was to verify parent-report of professional ASD diagnosis to the registry's database via a medical record review on a sample of IAN Research participants. Sixty-one percent of families agreed to participate; 98% (n = 116) of whom provided documentation verifying a professionally diagnosed ASD. Results of this study suggest that information collected from parents participating in IAN Research is valid, participants can be authenticated, and that scientists can both confidently use IAN data and recruit participants for autism research.

DOI10.1002/gepi.20595
Alternate JournalJ Autism Dev Disord