Evidence-based planning and costing palliative care services for children: novel multi-method epidemiological and economic exemplar.

TitleEvidence-based planning and costing palliative care services for children: novel multi-method epidemiological and economic exemplar.
Publication TypeJournal Article
Year of Publication2013
AuthorsNoyes J, Edwards RT, Hastings RP, Hain R, Totsika V, Bennett V, Hobson L, Davies GR, Humphreys C, Devins M, Spencer LH, Lewis M
JournalBMC palliative care
Volume12
Issue1
Pagination18
Date Published2013
Abstract

Children's palliative care is a relatively new clinical specialty. Its nature is multi-dimensional and its delivery necessarily multi-professional. Numerous diverse public and not-for-profit organisations typically provide services and support. Because services are not centrally coordinated, they are provided in a manner that is inconsistent and incoherent. Since the first children's hospice opened in 1982, the epidemiology of life-limiting conditions has changed with more children living longer, and many requiring transfer to adult services. Very little is known about the number of children living within any given geographical locality, costs of care, or experiences of children with ongoing palliative care needs and their families. We integrated evidence, and undertook and used novel methodological epidemiological work to develop the first evidence-based and costed commissioning exemplar.

DOI10.1039/c3cc42075b
Alternate JournalBMC Palliat Care