Development and validation of a celiac disease quality of life instrument for North American children.

TitleDevelopment and validation of a celiac disease quality of life instrument for North American children.
Publication TypeJournal Article
Year of Publication2013
AuthorsJordan NE, Li Y, Magrini D, Simpson S, Reilly NR, Defelice AR, Sockolow R, Green PHR
JournalJournal of pediatric gastroenterology and nutrition
Volume57
Issue4
Pagination477-86
Date Published2013 Oct
Abstract

Given the social constraints imposed by a gluten-free diet, it can be hypothesized that children with celiac disease (CD) living in the United States have a reduced health-related quality of life (HRQOL); however, there is no validated CD-specific HRQOL instrument for children living in the United States. The goals of this study were to develop and validate a CD-specific HRQOL instrument for children 8 to 18 years of age with CD and to report HRQOL in these children using both generic- and disease-specific instruments.

DOI10.1089/biores.2013.0014
Alternate JournalJ. Pediatr. Gastroenterol. Nutr.